August 1996 Eczema Mailing List Archive
This file contains most of the traffic on the Eczema Mailing List during
August 1996. Please note that the Archive has been edited for accessibility
as well as the protection of contributors' privacy. The full flavour of
the Mailing List can be experienced only by subscribing.
Date: Wed, 31 Jul 1996 22:30:49 From: Robert
The response to my posting about the magnets was interesting. I really
appreciate the feedback ie. get a good dermatologist. Our experience with
skin disorders is very limited and we've only been dealing with this for
the past 3 months. When Jaz's skin started to break in January we were
told she had a bacterial infection and then later she was diagnosed with
ringworm. So then it was off to the dermatologist for the first time. Aside
from being cold and unapproachable the dr. gave us very little info. We
were in his office for 5 minutes, he announced that she probably had psoriasis
or possibly atopic dermatitis (I thought psoriasis was really bad dandruff)
but he thought it was more likely to be psoriasis since it wasn't itchy.
He sent us on our way with samples of cortisone creams and lotions and
told us to come back next week. That was it!
That evening I searched through the internet on psoriasis and we were
horrified to see photos of people with such disfigured skin. Our baby had
psoriasis. I was beside myself. And I was so angry that this doctor had
treated the whole thing so casually and he didn't mention any side effects
to the cortisone. So much for informed consent.
We decided to get a second opinion. This doctor felt it was eczema and
very unlikely to be psoriasis. Again very little info, just that it doesn't
always itchy. Again cortisone ointments and lotions and this time I asked
about the side effects. With great annoyance, he informed me that the only
side effect of cortisone was that my daughters skin would get better. He
said, " My job is to worry about the side effects. Your job is to go home
and put this ointment on your daughters skin!" He had put me in my place,
a place of ignorance and blind compliance, a place where he is the expert
and I merely do as I am told.
I am looking for a third opinion, but the city I live in is fairly small
and I don't have that many choices. I am very anxious to know whether the
third opinion will be psoriasis or eczema (any thoughts on telling the
difference, I think we asked this before). Somehow I am not feeling hopeful
about what the medical profession has to offer (I do realize how well cortisone
can work), and although I remain skeptical about some "alternative methods"
I need to educate myself about skin disorders and not rely on any one model
of care to dictate to me what I should do. Rather I would prefer to use
the cortisone only when she really needs it (dr told me to apply generously)
and to apply principles of nutrition, diet changes etc. and yes maybe even
magnets. "First do no harm" is appropriate in this case and the FDA has
approved these magnets and considers them safe. I'm not sure it will help,
but it may have helped someone else so I'm willing to try it out. Anyway
I guess I got a little carried away - didn't realize how much I'd written.
Thanks for being there.
Date: Thu, 1 Aug 1996 10:18:22 From: Wren Subject: WEB site for psoriasis
Robert, Sorry to hear about the callous treatment you've received from
your local derm doctors. This is common, as we've discussed before. Caring
providers ARE out there, but one must really seek them out. I've had much
better attention and explanations about diseases, symptoms, and treatments
from alternative providers than standard Western doctors, but I do know
caring standard doctors exist too.
Since you have access to the WEB, Here's a good psoriasis site, complete
with photos: http://www.tecc.co.uk/public/psoriasis/psor.html
Date: Thu, 1 Aug 1996 10:59:38 From: Ann Subject: nerve sensations
Alicia, I also can scratch my legs and feel it in my spine etc. I think
it's just the way the nerves are hooked up and also due to the fact that
scratching changes the nerves over time. I also think that your queasy
feeling may be related to the intense itch-scratch sensations. The body
is so overwhelmed with itch-scratch that it signals the stomach to reject
food. I tend to almost black-out after a heavy scratch session; I think
this is a manifestation of the same phenomenon.
Date: Thu, 1 Aug 1996 10:51:44 From: Ann Subject: Jaz's doctors
To Jaz's Parents, I think you are taking the right approach: trying
everything you can at once. This way, when improvement happens, then you
can eliminate the one treatment that's the most trouble or has the worst
side effects. If the skin is still good, eliminate one more... and so on.
I'm sorry to hear that the derm doctors were so cold, but I have decided
(after 50 yrs. of eczema) that even a nice derm doctor isn't going to get
to the root of my problem. An allergist ( or a homeopath if you prefer
alternative med.) is more likely to figure out the reason the skin problem
is there in the first place. You DO need a dermatologist to get the skin
under control and to tell you if it's eczema or psoraisis, but I recommend
also seeing someone who's an expert on the immune system.
Date: Thu, 1 Aug 1996 17:15:04 From: Ralph Subject: Get a good dermatologist?
Thanks for your reply, Aida. I'm sorry to learn that the two dermatologists
you consulted were so insensitive. My own son, who is now seven, was basically
"cured" at age two by a dermatologist who has known my family for years.
Our dermatologist is a very smart and compassionate older man. His wife
is a psychiatrist and also a dermatologist, and they sometimes work as
a team (though not in my son's case). I also was reluctant to use steroids
on my son, as was the pediatrician who had been advising us up to that
time.
What I have since learned is that many, even most cases of infantile
eczema will disappear with time. The child can "outgrow" the condition.
Perhaps in my son's case that would have happened anyway, but it was obvious
that his two-week treatment with tar baths, topical steroids, and oral
antibiotics was extremely effective, and probably brought my son out of
his eczema cycle much more quickly than a less potent treatment alternative.
Since my son has not had any steriods or other treatment for the past several
years, there is no question of over-use of any medication in his case.
Date: Thu, 1 Aug 1996 18:56:52 From: Drew Subject: New subscriber
John, No, I wasn't kidding about retiring to a beach, I too have a good
experiences while vacationing at the beach. Thanks for the feedback on
Baby Magic. I'll give it a squeeze. Reading your e-mail, I think I wrote
it (all the same symptoms). Oh yeah, those eye lids.They get it every couple
of weeks. I've read that you should only apply .5% hydrocortison to eye
lids due to the sensitivity of the skin. As far as other treatments I've
tried (Antihistamines, steriods, Zonalon), they offer moments of fleeting
hope but no cures. I prefer to use lotions only and not subject myself
to the risks of drugs.
Date: Thu, 1 Aug 1996 15:47:17 From: Wren Subject: Sacs of inflammatory
fluids
I have had the juicy little vesicles at times, but not recently. Don't
know what makes them appear instead of dry patches.
Date: Fri, 2 Aug 1996 08:35:02 From: Samantha Subject: relax/salt water/holidays
Skin clearing on holidays/vacations brings us back to Alicia's point
about chlorine in the water. Whenever she gets out of town to an area with
unchlorinated water, her skin improves. I benefit from showering as little
as possible (a bit hard here in the tropics) as our water here is heavily
chlorinated. I also have stopped drinking the tap water and believe that
it has helped.
Chlorine kills all the good bacteria in our poor overworked systems.
Date: Fri, 2 Aug 1996 14:32:58 From: Alicia Subject: relax/salt water/holidays
Yes, yes I believe it is true that the chlorinated water is the source
of all my despair and sensitivity. As Sam and I have discussed before,
chlorine kills the bacteria in the gut, and can lead to a candida outbreak
internally - hyphae across the gut letting through macro molecules of food
and therefore food allergies - , and a disruption in the pH balance on
your skin externally. I know that my skin is definitely better on rainwater
water, not cholrinated water, and even taking cold, not hot showers makes
a big difference. Does anyone know of any studies looking into the effects
of chlorinated water on the population? There must be some as putting chlorine
in the water is a pretty major step.
I was also just talking to a woman I work with who gets asthma/eczema
and she had been clear from eczema for about 5 years - since she moved
out of town and started drinking and showering in bore or artesian water.
She's just come back from a holiday down to southern Australia where her
skin had broken out, as did her son's skin - which had never had eczema
before in his life. Back at home and back onto bore water, they've both
cleared up.
Again my sister has a house in B and a house in the country. She can
stay in B for 4 weeks before her skin breaks out into eczema, she moves
back the country - and onto tank water - and it takes anywhere from a week
to 2 months to clear up.
I'm convinced but I just have to find a way to get to a place where
I can either have tank water, or where the water is sufficiently unchlorinated
for me to tolerate. I don't believe my eczema is just stress, I think it's
candida and chlorinated water.
Date: Fri, 2 Aug 1996 19:20:15 From: Brenda Subject: Sacs of inflammatory
fluids
When we talk about eczema it seems to mean different things at different
times and to different people. Perhaps something useful which this list
could do would be to define what the term "eczema" really covers.
Also, we talk a lot about treatments (or palliatives) but less about
causes or triggers. To violently allergic people the cause is fairly obvious,
but to many of us it remains shrouded in mystery. Someone in today's postings
put it down to candida and chlorine. Has anyone really been able to pin
down what brings on an attack? If we could start to catalogue any triggers
which consistently give rise to eczema we might be able to offer some evidence
to people researching this area (I fervently hope that these beings actually
exist!). This is a fairly large group communicating regularly and our pooled
experience must surely offer some kind of insight to the medical community.
Date: Fri, 2 Aug 1996 07:21:19 From: Eric Subject: Hydrocortisone on
eyelids
I've been told not to use my normal hydrocortisone ointment on my eyelids
as the skin is too sensitive. When I was in the US, my ophthalmologist
there prescribed a special 'low-strength' ointment for the eyelids called
Tobradex. It doesn't sting the eyes either.
Date: Fri, 2 Aug 1996 12:22:09 From: Ralph Subject: relax/salt water/holidays
Alicia, Have you considered trying a chlorine filter, or some other
such step? It seems it might be worth the expense to test your (very interesting!)
theory.
Date: Fri, 2 Aug 1996 10:24:48 From: Ann Subject: inflamatory fluid
The fluid filled things I get are more like blisters (under the surface
of the skin) than sacs - I.e. they don't hang or protrude. I can see them
clearly only on my hands but I have actually felt and heard them popping
(when I press) on my face during a real bad flare. When I scratch heavily
on my lower legs, I later find salt-like stuff (dried fluid) there which
I have termed "scratch crystals". I think the fluid is histamine (medical
pros, please correct me if I'm wrong)
Date: Fri, 2 Aug 1996 12:18:53 From: Ralph Subject: Sacs of inflammatory
fluids
Does anyone know of a scheme of catergorization for eczema? I think
the two ideas (categories and triggers) are intimately related; presumably
the people in different eczema categories would have different triggers.
Personally, I have eczema that is dry, scaly, and sometimes swollen.
My triggers are either airborne allergens such as pollen, or contact with
irritating substances on my hands. I tend to think the allergens are a
"primary" cause, while the local irritation is probably secondary, in the
sense that it just makes the underlying situation worse.
Some people might even have more than one kind of eczema...
Date: Fri, 2 Aug 1996 15:21:10 From: Alix Subject: Doxepin use for
itching
I recently went to my derm who prescribed doxepin to relieve itching.
I looked it up in the Physician's Desk Reference and it is primarily used
as a psychotheraputic agent. I tried it once during the day and it made
me extremely tired but I couldn't sleep. I kind of felt spacey too. These
symptoms lasted for over 10 hours! However, it did relieve the itching.
I'm not sure what the dosage was, but I only took one capsule. If I try
it again, I will half the dose. Has anyone used this drug for relief of
itching.
Date: Sat, 3 Aug 1996 16:35:26 From: Brenda Subject: Benadryl
I've seen several references here lately to Benadryl. In New Zealand
this is a cough medicine. Is it something different in other parts of the
world?
Date: Fri, 2 Aug 1996 22:03:16 From: Ann Subject: new subscribers
Pamela, Your doctor was wise to start you on a low potency (at least
by my standards) steroid ointment. But don't hesitiate to ask for something
stronger at least to get things under control. I find it necessary to use
stronger stuff when dealing with such a large area.
Date: Sat, 3 Aug 1996 13:28:25 From: Ralph Subject: Benadryl
In the USA Benadryl is an antihistamine, one of the old original ones
I believe, diphenhydramine hydrochloride. What is the chemical name of
the "Benadryl" used in NZ as a cough medicine?
Date: Sat, 3 Aug 1996 11:43:33 From: Karen Subject: Sacs of inflammatory
fluids
From my own experience I have had everything, dry patches, red "angry"
patches, oozing, fluid filled vesicles, peeling skin that makes my face
look like a croissant...etc. you name it and I've had it. I would like
to suggest a wonderful book I read recently called "SKIN DEEP" by Ted A.
Grossbart and Carl Sherman...The 1992 edition is great..sorry I don't know
if anyone else has read it recently..let me know!!
Date: Sat, 3 Aug 1996 14:55:59 From: Wendy Subject: Steroids, Creams
I've learned it's very important to apply creams that have no fragances
or additive. The three recommended by my dermatologist are: Eucerin, Vanicream
and Cetaphyl. It is essential to moisten the affected area with water before
applying the cream. I just switched to Vanicream and I find it very soothing.
Re: topical steroids--I don't think you should ever apply to eyelids
or any other thin-skinned area. The Dr. has warned that long term use of
topical steroids will thin the skin. For the patches of dermatitus I sometimes
get on my neck I use Westcort ointment, prescribed by my Dr. She won't
allow me to use a strong Steroid on my neck--only my hands.
Antihistamines are a medication that block the inflammatory process,
and thereby serve to bring relief to the itch.
Date: Sun, 4 Aug 1996 11:56:25 From: Alicia Subject: inflamatory fluid
Yes, that's exactly what I get... and know that when I was on the desensitisation
treatment for dustmite my joints were just oozing yellowy fluid which I
was told was histamine. I'd like to know what it is exactly though, - ie
I think histamine is an amide...but am not sure, and why are the joints
are particularily effected? Does internal histamine travel via the lymphatic
system or by blood? When I do have bad eczema on my ankles and knees for
instance, the glands in my groins go up, arms, wrists and the glands in
my armpit go up. I think the glands are reacting to wounds in the skin
in general but I still don't know about the joint stuff. I've asked doctors
and they haven't really been able to explain much, and there's only about
half a paragraph in my biochem book to explain it. So does anyone else
out there have any answers?
Date: Sun, 4 Aug 1996 12:28:47 From: Alicia Subject: relax/salt water/holidays
Ralph - I have an expensive water purifier for my drinking water but
am yet to get a filter for the shower head. Since I've reduced my showering
- I used to shower twice a day, now it's once every 2 days- and shower
using only cold water, my skin has cleared up a lot and has got a lot stronger.
I also have fine blonde hair and noticed that the irritation on my face/neck
often was following the length of my hair. At first I thought that it could
be the shampoo that I used, stopped using it, changed brands, used only
conditioner, tried just rinsing my hair etc.. etc.. but the irritation
didn't clear up. (I went for 3 weeks without washing hair which I usually
wash daily due to the fact that it greases up so quickly - a result of
an effective ad campaign to addict consumers to detergents for their hair.)
I think I am sensitive to something else in the atmosphere besides chlorine
of course, but I believe it's chlorine that creates the sensitivity. Hot
showers I find are soothing, but they do nothing for the condition of your
skin. If as a baby I was fed on formala plus tap water, then I may have
even developed an allergy to chlorine, besides the fact that it killed
all the digestive bacteria in my gut, led to a candida outbreak and made
me allergic in general. Yes, I believe chlorine is the anti-christ, and
should not be added to the public's water supply.
Anyway to get back to your original question.....I would investigate
the possiblity of getting a water filter for the shower head except that
I'm probably about to move interstate and I believe that tank water is
far better that filtered water. Maybe there are some great water filters
out there, but I have more faith in tank, rain water.
I also just called my sister living in B and she's just broken out with
eczema again after living there for the last 4 weeks. She's now pretty
keen to move back the the country because she always clears up there -
drinking and showering in rainwater. - She lived in the country for 4 years
before going back to renovate her house - and she was totally clear of
eczema.
Date: Sat, 3 Aug 1996 21:31:38 From: Ann Subject: joint eczema
Alicia, I think the skin over the joints is different because it has
to stretch so much when the joint is moved, so maybe that's why you get
more histamine there (I have not noticed this on myself). What I have noticed
about joints is that I can really do scratch damage there because of the
hard bone underneath - sort of like putting one's skin "between a rock
and a hard place"? I don't know for sure, but I think that the histamine
comes to the skin via the blood and that lymph nodes swell up in response
to infection and/or inflammation.
Date: Sun, 4 Aug 1996 14:27:19 From: Alicia Subject: joint eczema
Yes probably. Maybe it's also that when the histamine is travelling
through your body, looking for a suitable target site to inflame, and/or
be excreted from, the joints - which also seem to lack a lot of dermal
oil - are the easiest way out.
It's not really the bone that breaks the skin with me though, it's the
little bubbles underneath the skin. When I scratch the bubbles burst, breaking
the skin and the bubbles could be anywhere... lower arms, inner shins,
behind my knees...
What's the feed back to the lymph nodes though, and what's the trigger
for your bodies cortisones to start reducing inflammation? I think that's
all via the lymphatics.
Date: Sun, 4 Aug 1996 17:04:34 From: Brenda Subject: Benadryl
>>In the USA Benadryl is ... diphenhydramine hydrochloride<<
Well, well. Same old thing, but it also has ammonium chloride and sodium
citrate. Never thought of taking a cough mixture for my eczema.
Date: Sun, 4 Aug 1996 13:29:30 From: Ralph Subject: relax/salt water/holidays
Alicia, it sounds like this country area you are talking about is definitely
the place we should all move. Where is it? Maybe we could establish an
eczema colony (just kidding, smile, chuckle, emote, :-)
Seriously, it does sound great. My skin feels better just thinking about
it. When can I go?
Date: Sun, 4 Aug 1996 14:51:52 From: Michael Subject: Eczema on the
Web
I have found some very interesting and useful information on the Web.
Some of it is technical but one can glean quite a lot from it nevertheless.
Do have a look. Some items are long (19 A4 pages) and are, perhaps, worth
printing.
Social Hygiene Handbook - Eczema by Dr Y M Tang (Hong Kong) http://www.hkma.com.hk/std/eczema.htm
Atopic Dermatitus From a German University (Text- English) http://www.rrze.uni-erlangen.de/docs/FAU/fakultaet/med/kli/derma/vorlesun/atopie
/ atopisch.htm
For those on anti-depressives, Anafranil is often prescribed. A monograph
on the drug can be found at: http://www.mentalhealth.com/drug/p30-a01.html
Food allergy http://www.gem.co.za/ALLSA/food_f.htm
Social Hygiene Handbook - Pruritus Dr Leung (a technical run-down on
itching) http://www.hkma.com.hk/std/pruritus.htm
Social Hygiene Handbook - Principles of Prescribing Topical preparations
and Topical Steroids (includes table of potency) http://www.hkma.com.hk/std/principl.htm
Somone in New Zealand was asking about Benadryl. It is both antihistamine
and decongenstant. Read about it at length at: http://www.mentalhealth.com/drug/p30-b01.html
Date: Sun, 4 Aug 1996 18:40:22 From: Gayle Subject: Steve/vitamin C
I have not noticed that Vit C. helps, but I haven't taken it often and
then I had tried large doses.
What dose do you take per day and how do you space that out?
Date: Sun, 4 Aug 1996 20:47:33 From: Drew Subject: Doxepin use for
itching
I have used doxepin topically, however, found the side affects (drowsiness,
unclear thoughts) too distracting.
Date: Sun, 4 Aug 1996 18:26:06 From: Karen Subject: vitamin C and others
I often use vitamin C to alleviate my itching as well. I take a 500mg
tablet in the morning or at night instead of antihistamine (antihistamine
makes me feel like I'm on Mars).
Date: Mon, 5 Aug 1996 18:49:39 From: Brenda Subject: Good vibrations
A short while ago someone sent a post about the beneficial effects of
an electric shaver. It didn't seem particularly useful at the time as the
thought of shaving eczema was too horrible to contemplate. However, I suddenly
remembered that I have a spot massager and, having a particularly stroppy
patch of skin, gave it a going over with the massager. Well! - the result
was just magic! It's scratching without damage - and the itching went away
for quite some time (about 24 hours). Honestly, I don't have shares in
a small electrical appliance company, but it does seem worth giving a try,
even if only for temporary relief.
Date: Sun, 4 Aug 1996 21:39:19 From: Wayne Subject: Zonalon
Drew: I had the same experience with Doxepin when I tried the topical
version (Zonalon, by Genderm). Goes to show how stuff that gets on skin
soaks in to affect us from the inside. I even got thirsty, It did stop
the itch. I don't use it a lot, actually very rarely.
Date: Mon, 5 Aug 1996 15:51:23 From: Michael Subject: Eczema and the
Web (2)
One more item which may interest us.
Eczema: dermatitus by David Hoffman - an explanation of eczema followed
by apparently authoritative herbal prescriptions. Five pages.
http://206.135.37.254/library/books/hoffman/skin/eczema.htm
Date: Mon, 5 Aug 1996 14:26:26 From: Gordon Subject: misc
As mentioned by someone, I too am interested in what 'causes' a flareup
of Eczema. I thought mine was food related, but am not so sure now. Where
I live has for the most part (especially wintertime) very dry air. My dermatologist
stresses bathing infrequently with tepid water, and using a very good moisturizing
cream/lotion especially after bathing. My eczema takes the form of red
dots like chicken pox, red patches especially on the chest area. Sometimes
some of it looks like acne to me.
Date: Mon, 5 Aug 1996 12:25:07 From: Alix Subject: Steve--Doxepin use
for itching
I don't think I will take doxepin again unless the itching gets real
bad, I can't handle the fuzzy thinking and drowsiness for a week or two.
Date: Tue, 6 Aug 1996 08:07:08 From: Alicia Subject: Hello
My eczema, and a whole lot of my other symptoms including my milky tongue
have either cleared up or improved out of sight since I've gone on an anti
candida diet. If candida is your problem - symptoms include a milky tongue,
itchy ears, thrush, tinea, dandruff (yes dandruff is caused by a yeast
- not candida but another fungus) then you can get a short course of anti
fungals from your doctor usually, otherwise just fast for 4-7days to starve
the yeast, and drink only mineral water - not tap water as this often contains
chlorine which may make the problem worse. For the next few weeks avoid
all sugar, coffee, refined foods and fermented products - including soy
sauce - and then re-introduce them slowly.
Date: Tue, 6 Aug 1996 14:51:55 From: Gillian Subject: relax/salt water/holidays
The first time I got clear of eczema was when I met an alternative type
doctor who told me that all the cortisone treatments which had been prescribed
to me before were doing - was blocking up toxins that were trying to exit
through my skin. [I.e. you can cure (temporarily) the symptom with those
medical creams, but only exacerbate the internal problem.]
His advice was to clean out inside combined with reflexology treatments.
Essentially it was a matter of cutting out foods that increase the acid
in the body. The longer I follow that regimen, the more it improves, and
sometimes dissappears altogether for months. Eating fresh organic food
and clean water definetly helps in my case; the only problem is that as
soon as my symptoms disappear, the temptation arises to slide back to the
coffee, red wine and meat habits. Where I live we do have natural unchlorinated
water all the time though (for bathing and drinking); and now I grow organic
fruit and vegetables, as most of the ones in the shops are loaded with
pesticides anyway.
Date: Tue, 6 Aug 1996 15:10:03 From: Michael Subject: re. prednisone
vs yeast
Simon: You were talking about Prednisolone some time ago. I gather it
part of your `first aid' kit. I would be interested to know how `thin'
you can make your taper and keep the scratch away. I am starting a course
tommorow of 30mg/day week-one, 25mg/day week-two, etc etc over five weeks
finishing up wiyh 5mg a day.
Did you find that 5mg/day was enough?
Date: Tue, 6 Aug 1996 15:09:57 From: Michael Subject: Eczema on the
Web (3)
Prednisolone is a synthetic corticosteriod and is much the same as Prednisone,
I believe. Medicine Net has three pages on Prednisolone which I found to
be very interesting as I am just starting the drug. The material on side
effects is useful to know about. You can find it on:
http://www.medicinenet.com/mainmenu/pharmacy/ARTICLE/prednsol.htm
The spelling prednsol in the address is correct.
Date: Tue, 6 Aug 1996 15:10:00 From: Michael Subject: New subscriber
Christopher: May I ask how you are getting on with Prednisone? In June
you could not get below 40mg a day without suffering. Is that still the
case? I am particularly interested because my doctor has started me on
30mg tapering over six weeks.
Date: Tue, 6 Aug 1996 16:04:06 From: Steve Subject: Prednisone mimimum?
I can get effective results using dexamethasone .75 mg two tabs every
other day. Dexamethasone .75 mg is supposed to be equivalent to 2 mg of
prednisone.
Date: Tue, 6 Aug 1996 16:04:38 From: Steve Subject: Alex/Steve--Doxepin
use for itching
Right now I am having a severe bout and will take anything for relief.
My dr. said, after a week the drowsing symptoms will subside. I asked him
again about the yeast and he did give me a prescription but I need to wait
a week until my flare subsides, otherwise I will be taking too many medications
at the same time, he says.
Date: Wed, 7 Aug 1996 02:57:22 From: Michael Subject: Dermatop, Skin
Cancer Risk, Daily facials
Hello, I have three questions that I am hoping you all can help me out
with. Thanks in advance for any answers you can give to any of these questions.
-
My dermatologist seems to be a cheerleader for a topical cortisone brand
named Dermatop. It is a prednicarbate emollient cream .1%. He says it is
very safe to use on my face and neck regularly and it does work fairly
well. Another dermatologist though said that this was too strong for my
face and I was wondering what if any experiences you have had with Dermatop
or if you have any insight.
-
Does anyone know if patients with chronic eczema have an increased chance
of getting skin cancer? I figure that the increased replication of skin
cells and immunosuppresion from cortisone may be a good breeding ground
for cancer cells but I really haven't heard anything.
-
Finally, every morning I seem to have a layer of dead skin, not peeled
yet, but whitened and dry, on certain areas of my face and neck. First
I am curious how they got there even when I don't think I scratch much
at night. Also, when I shower, I always rub this skin off revealing nice
new skin underneath. I have found that when I don't rub it off, I tend
to feel much more irritated since it is then painful to move my face and
neck, I then tend to pick at it and then get secondary infections. I'm
wondering if it is really bad to rub off my dead skin in the shower almost
every day even though in the short term, it really makes me feel better.
Date: Wed, 7 Aug 1996 08:48:25 From: Wren Subject: Daily facials
I can only address your third question, as I avoided using cortisone
whenever possible, and had never considered that there might be a link
between eczema and skin cancer.
There was a period when my skin was dry and sloughing all over my body,
including my face. I too rubbed off the dead cells in the shower, and had
no ill effect. When I asked my Chinese doctor why the skin sloughed so
much, she replied that the skin just kept pushing the dead cells to the
surface, only in my case much more quickly than normal (I forget now why).
Date: Wed, 7 Aug 1996 10:48:01 From: Ann Subject: Mike's questions
Mike, I don't know what steroid is in the ointment you mentioned. I.e.
.1% of hydracortisone is relatively safe but .1% of more potent stuff would
not be safe for long term use. However, sometimes a tiny amount of real
potent stuff will clear my face for days; whereas if I stay with the weaker,
"safer" stuff, I need to apply it heavily, never get the face totally under
control, and usually end up using the strong stuff eventually! So it's
hard to say which drug is "safer" when you consider all that. Plus, if
you stay with a weak drug that keeps the eczema under control but doesn't
clear it, the skin is still more sensitive to contact irritation and infection.
There's no clear-cut answer.
I, too, have wondered about the steroid ointment and skin cancer connection.
Since we try to use as little ointment as possible anyway, we probably
shouldn't worry about sun; except, of course, to avoid unnecessary exposure
like anyone should. I don't think the eczema itself predisposes us to skin
cancer; in fact, I have had liver spots disappear after a major face flare
and peeling!
If you find that gently rubbing off the loose skin in the shower makes
you more comfortable, it must be the right thing for you to do. I can get
by with it on the body skin, but it seems to make my face worse.
Date: Wed, 7 Aug 1996 11:21:01 From: Steve Subject: Flaking skin. What
to do? NO research?
I think when the skin flakes it is acting just as if it got sunburned.
Sun and allergies are both irritation that cause peeling. I too rinse a
lot to get the old skin off, then I moisturize. Reversing the order, and
doing one without the other is against all common sense. AND.. there must
be more that will help!
But there is a dicotomy of thought here, at least. Some are saying to
moisturize the skin with use of very little water. I could not stand that.
I would feel unclean and I would, excuse the expression, "stink", if I
did not bathe daily, not to mention my fear of increasing the risk of infection
by providing a great culturing environment on the skin.
My dermatologist says use little water. He has beautiful skin. I really
doubt this little water method. Although it must have truth in it, this
little water theory is "used" by dermatologists who are just grasping at
straws. I think it is "mentioned" because the traditional approach offers
little else. They have to offer something. My doctor is new. We shall see
what he offers.
I still don't hear of any large studies being quoted about ANY basic
approach to this situation or others. I do hear doctors criticizing by
saying certain successful procedures, which we talk about here, are anecdotal.
My allergist says that the good effects are all placebo effects. But what
has research said about all these things?
Date: Thu, 8 Aug 1996 08:38:52 From: Alicia Subject: Showering
I used to doubt the little showering, using little water method too.
I don't think that water as such is bad, and I do think that showering
will sometimes remove the irritants, but since I've been showering once
every two days, and only in cold water (made easy by the fact I live in
the tropics) my skin has really improved. As I've said numerous times before
I think it's the chlorine in the water. Why don't you try what I did and
use an aloe vera or moisturising toner instead of water to moisten your
face and rub off the flakey bits, then put on vaseline, or nivea or some
other emollient. The thing I think is bad about the hot shower, rub-face-raw
method is that it not only exposes the skin to more physical damage, it
dries it out and makes it more sensitive. Since hot showers are sometimes
soothing.. it becomes a vicous cycle. Try and break it! Really my face
is eczema free now, and I don't stink.
Date: Thu, 8 Aug 1996 08:48:03 From: Alicia Subject: Dandruff is a
yeast
Just thought everyone might be interested in this snippet from a women's
magazine...
"Dandruff is an extremely common and annoying condition. It's thought
to be triggered by a yeast called Pityrosporum ovale, which is more prevalent
in some people than in others. For mild dandruff, wash your hair regularly
with a very mild shampoo. In more severe cases you'll need a special anti
dandruff shampoo containing coal tar, selenium sulphide, pyritione or an
anti fungal agent. If over-the-counter treatments don't work, consult your
doctor for a stronger prescription only (this is probably cortisone based!)
product. Also examine your diet and lifestyle - coffee, alcohol, sugar
and refined foods may aggravet the condition and it is often stress related.
Blackmores recommends trying a pre-shampoo treatment such as Apricot and
Jojoba Revitalising Hot Oil Treatment, which you should leave in for half
an hour, or Almond or Milk shampoo to moisturise the scalp."
I don't know about the almond or milk shampoo - but I'd take the dietry
advise, along with eliminating other fermented products and taking zinc
and biotin supplements.
Date: Wed, 7 Aug 1996 20:06:07 From: Gary Subject: Hydrocortisone on
eyelids
Good dermatologists will tell you that using steroids on your eyelids
is a very bad practice and must be avoided. It may lead to development
of cataracts and other problems in later years.
Date: Thu, 8 Aug 1996 00:05:04 From: Ralph Subject: Showering
Alicia, are you planning to put your (very intriguing) hypothesis to
the test? For example, what about that chlorine filter? I just saw such
a filter listed in a catalog called Self Care, which Wren told me about,
I believe. This filter fits right onto your shower head. If you want specifics,
let me know. It would be wonderful to find such a simple connection. I
do know that too frequent showering makes me itch all over, and my skin
starts to feel "tight". Maybe it is the chlorine!
Date: Thu, 8 Aug 1996 17:05:06 From: Alicia Subject: Showering
I actually rang up about chlorine filters the other day, but I'm going
to be moving out of my house in a couple of months - or whenever I sell
it - so I thought I'd wait until I move somewhere where I know I'm going
to be for a while. I also doubt the effectiveness of small shower head
filters and would prefer - if I had to stay on town water - to get a larger
filter to attach to the water main - which I believe are readily available
here. I suggest you buy one though, if it isn't too expensive and see if
it makes a difference. I think the chlorine induced candida problem could
be a big one too!
Date: Wed, 7 Aug 1996 22:26:24 From: Steve Subject: Alicia/Showering
I think this water thing must have a lot to do with the status of the
individual's skin. The location of, degree of, and the extent of involvement
of, and the cause of the eczema, must be factors. Mine is atopic eczema
which means it is caused by allergy. I have allergic reactions on my skin.
I am not sure if that is your situation. If not we may be talking a bit
about apples and oranges to some extent, although basic skin care outside
of this syndrome must apply.
Fortunately, my face is hardly involved. The rest of my body is. I think
if only my face were involved the "Reduced water and increased lubricants"
logic, for me would be there. Perhaps for Mike, because he mentioned only
his face/neck, the reduced water and increased lubricants will work.
I don't scrub. I do use a washcloth, which my doctor says I should not
use, but I use it gently. I do use Vaseline. I take cool showers. So the
variable here seems to be only the frequency of the water use.
Date: Thu, 8 Aug 1996 22:23:34 From: Brenda Subject: Causes of eczema
Steve writes >>Mine is atopic eczema which means it is caused by allergy
<<
I don't think that we can presume that, can we? If that was all it was
we should be able to locate the allergen and get rid of it. I still have
strong suspicions about infections as my skin tends to come up in infected
spots without any break on the skin. It seems to come from underneath as
the area is often very hot before the infected bits appear.
Date: Thu, 8 Aug 1996 01:36:16 From: Steve Subject: The Stone Age of
Allergy knowledge?
Brenda, you have a good point. "Atopic" is the definition given by medical
doctors. Perhaps it has the same value as the educational term for a child
with learning difficulties that no-one can figure out -- dyslexic.
I do get relief from my eczema from antibiotics. Beyond any doubt. Yet,
I still have major allergies beyond any doubt, which do have a direct relationship
to my eczema. After a few dozen years of trying and trying foods over and
over again, one learns. Of course we may find out that the foods are doing
something, or our bodies are not doing something, or both, that is causing
problem. Perhaps we are in the stone age of allergy knowledge.
Brenda, locating the allergy sometimes is only a small part of the battle.
Getting rid of allergens are not that easy. As is avoiding them. "Getting
rid of them" isn't that easy. If it was, they would be gone.
Date: Thu, 8 Aug 1996 02:04:20 From: Steve Subject: Hydrocortisone
on eyelids
I have cataracts in my eyes. They are stable. Cataracts are more prone
to develop in people with eczema, as the skin of the eyes are an extension
of the skin. Using steroids magnifies the chances of cataract development.
I used to use steroid eye drops until I was seen by an eye doctor that
shrunk in horror (almost) when he learned of this. Steroids in the eyes
can be disasterous, as you know. Near the eyes? It can't be good.
Rinsing your eyes and nose in the shower is very helpful. Then use vitamin
C regularly. Ice on your eyes, lightly if the itching is unbearable. Antihistamine
eye drops are ok, I think. I have been using them a long time from many
doctors. The drops are called "Naphcon A" from Alcon Laboratories in Ft.
Worth Texas 76134. The drops are effective. After showering, a light coat
of vaseline around the eyebrows, and the nose near the eyes, helps the
skin from itching, and therefore reduces the eyes from itching.
Date: Fri, 9 Aug 1996 15:20:37 From: Alicia Subject: Steve/Showering
According to this book that I have read "Allergies a disease in disguise"
by an author who I forget (but it's out of print anyhow) allergies are
caused by a number of things which can compromise the immune system, stress
the organs and disrupt digestion.
Things which do this can be, bacterial infections, certain drug treatments
or a candida infection. I had all the symptoms of a candida infection...
something which can occur if you are drinking chlorinated water because
the chlorine in the water kills the digestive bacteria in your gut, means
that yeast that usually competes with bacteria goes out of control, can
put hyphae across the intestinal wall and you start absorbing undigested
food particles into the bloodstream. The body classes these molecules as
foreign and you can a hyperactive immune reponse and histamine released.
Candida also disturbs the blood pH - I think someone else mentioned
that an alkaline, anti toxin diet helped her. Anyway, the author of this
book said that candida was only one cause of the "leaky gut". You don't
need to be drinking chlorinated water to have a candida problem, but it
certainly helps it along. Another cause could be an infection with the
stomach ulcer bacteria - I forget it's name - and a course of anti-biotics
may help - which maybe is what Ralph's problem is and why anti biotics
help him from time to time - and some drug treatments may also damage the
intestinal wall.
Anyway for me, I know that showering in unchlorinated water isn't the
total answer because obviously I've got to do something about the systemic
candida in my body - fasting, taking zinc supplements, and I've also just
started taking the Chinese herbs. The allergies I have are both contact
and dietry. I know that if I don't shower, the areas of contact allergy
- face and lower arms clear up - and the eczema on my ankles, behind the
knees and on the joints are also slowly getting better - so I think I'm
slowly repairing my intestine, blood pH and my organs are under less stress.
Although each case is different the author basically recommends that
people - prepare their body to get well by getting rid of the candida,
bacteria ... whatever the damaging agent is, then eat only raw vegies and
mildly cooked food and supplement each meal with digestive enzymes bought
from the health food store, and take zinc, biotin and anti -oxidant supplements.
She concentrates really on the process of sensitivity, rather than finding
the individual allergens.
Anyway it sounds like your eczema is probably more dietry due to damage
to your intestine - especially if it's only on your joints, or hands. I
think you're right that the location and extent of your eczema can define
your problem to some extent... but you didn't say where you got your eczema..
but you're probably right in that showers may not be your problem. Also
I didn't think that "Atopic" meant "allergenic" necessarily - I thought
it described the genetic and hereditary factors involved in the dermatitis.
Date: Fri, 9 Aug 1996 19:04:03 From: Brenda Subject: The Stone Age
of Allergy knowledge?
I didn't mean to make light of allergies - I'm aware of how serious
they are for many people. I was only querying your statement that having
atopic eczema meant that you had an allergy. It seems that although allergies
are a frequent cause of eczema, it's likely that they are not the only
cause. What I was trying to say was that allergies give you something to
hang your hat on (I.e. there is at least a chance that the allergen will
be identified), whereas many cases of eczema seem to defy all diagnosis.
But then this is what the list is all about, isn't it? Exchanging information
about what we suspect may cause our own particular eczema. Let's keep talking,
and then perhaps some kind of light will begin to dawn.
Date: Sat, 10 Aug 1996 00:42:40 From: Brenda Subject: CHT
My eczema started late (at around 50) and I've never really tried to
establish what caused it. All I know is that around that time I was having
real heat problems, and eczema often seems to be associated with heat.
I tend to be rather allergic, with hay fever, hives etc, so allergy may
well have played a part. Also, my internal arrangements seem to be a bit
temperamental, so the fungal thing may come into it.
The eczema started on my hands and stayed there for some time. Then
it suddenly started spreading, and finished up all over the place. I had
a mixture of types - vesicles, dry swollen skin and infected spots. Prednisone
got rid of it temporarily, but it came back as soon as the course was finished.
Then I saw a programme on TV about a Chinese doctor in London who had queues
at her door every day for eczema treatment. A doctor at Great Ormond Street
Hospital for Children was very interested in it, and worked with her to
formulate a standard prescription which could be used for a variety of
cases. It's not the usual way of doing it as Chinese herbalists like to
prescribe individually. Your presciption will vary every time you get it,
presumably according to the progress of the condition.
After this I went to a Chinese doctor for about 5-6 weeks. It's impossible
to know what you're getting, but it's a mixture of leaves, seeds, bark
and some powdered material. The effect was almost immediate, though it
took a few weeks to completely disappear. I also used a herbal wash on
the worst itchy bits, but it's impossible to tell how effective that was.
A very restricted diet was recommended with all the fun things in life
taken off it, but this was only for the course of the treatment to allow
it to work.
This was 4 years ago, and since then I've only been back to the doctor
once. I have bits and pieces of eczema still, I take great care to keep
my skin moisturised, and if necessary I dab a bit of steroid cream on,
but I've had nothing like my earlier condition. I still get allergic reactions
to various things so it obviously made no difference to that, but they're
not serious. I believe the treatment is more successful if you haven't
had eczema for a lengthy period, which was the case with me. There seems
to be no kind of guarantee of who will get relief, so the only solution
seems to be to "suck it and see".
After the treatment I felt like a new woman, but of course it's impossible
to tell whether that was because my skin had cleared or because some underlying
complaint had been removed. I had been really afraid to go to the Chinese
doctor as I felt it was a last resort, and if it didn't work then there
was nowhere else to go. I certainly wasn't convinced it would work, so
I don't think it was a question of mind over matter.
Incidentally, the doctor had on his wall reports of many cases of asthma
which he had treated - another allergy complaint?
Western medicine doesn't like it of course as it isn't properly controlled,
but I take comfort from the fact that the Chinese have been practising
medicine a lot longer than the West.
Date: Fri, 9 Aug 1996 11:05:02 From: Ann Subject: definitions
As I understand it, ECZEMA means a dry, probably allergic type rash.
ATOPIC means not confined to any particular area; either all over the body
or clearing and breaking out in various areas at various times. The term
ATOPIC also is used to describe allergic conditions in general; I.e. the
ATOPIC TRIAD is eczema, asthma and sinusitis. So a person with just hand
or behind -the- knee eczema technically doesn't have ATOPIC DERMATITIS;
although they may be considered an ATOPIC INDIVIDUAL if they also have
asthma or hayfever. Someone out there with more medical knowledge: please
correct me if I'm wrong.
Date: Fri, 9 Aug 1996 16:21:08 From: Mary Subject: Hives + Eczema and
Doxepin for itching
The discussion about doxepin caught my attention and made me wonder
about whether others on the list are plagued by hives in addition to their
eczema.
I have suffered with eczema off and on all my life. These days I live
with regular facial flares and constant eczema on one hand only. But I
also suffer from what have become in recent years chronic bouts of hives.
My dermatologist prescribed doxepin to help me through bad times of
itch and at 10 miligrams a day it seemed to help a little -- at 20 milligrams
it helped a little more. The intensity of the burning with my facial flares
was reduced, the flares seemed not to last as long and the hives didn't
seem so bad.
At first I felt sedated and naseous on the doxepin but I perserved and
those side effects passed.
But when the hives and flares still broke through, the doctor increased
my dose to 25 milligrams. After a month on that dosage I had to stop. It
was giving me borerline migraine symptoms where I trouble focusing with
my eyes -- and while I was on 25 milligrams I had the worst facial flare
I have in months.
What to make of it all? Can your body adjust to the doxepin to the point
where it is no longer effective as an anti-histamine?
Date: Sat, 10 Aug 1996 10:52:36 From: Brenda Subject: definitions
No more medical knowledge - just a fully qualified hypochondriac - but
I have the impression that "atopic" refers to the fact that the eczema
is not caused by an external source, like contact dermatitis. My medical
book lists it as an endogenous eczema, or one caused by an internal condition.
Date: Fri, 9 Aug 1996 19:38:55 From: Donna Subject: definitions
You're pretty much right on target, according to my copy of Taber's
Cyclopedic Medical Dictionary....
Date: Mon, 12 Aug 1996 21:41:28 From: Iggy
I have a nine month old son who has been diagnosed with Atopic Dermatitis.
He has recently (2 days ago) had his second flare-up.
We are currently using Westcort .2% hydrocortisone .2% ointment 2 times
a day and putting on copious amounts of petroleum jelly also 2 times a
day. After our sons first flare-up this is what we were told to do for
three weeks and it worked wonderfully. When we are not dealing with a flare-up
we use cortate 1% hydrocortisone 1% ointment (the 1% is not supposed to
be as strong as the .2%.).
We are looking at taking a three pronged approach to dealing with our
sons eczema:
-
Try to find out what the trigger(s) is/are. To do this we will be trying
different foods on a three day rotational basis and looking into our use
of household cleansers and other household chemicals. (we think that this
last flare-up might have been brought on by the cleaner we use for our
bathtub. We immediately gave him a bath after cleaning the bathtub and
his flareup happened soon after.)
-
Look into things to keep the eczema under control. In between flare-ups
what should we do to keep the skin healthy and comfortable. e.g. types
of soaps to use, alternatives to laundry detergents, ways to reduce itching
etc. I realize that in some instances this might seem to be the same as
the first approach but there are some differences.
-
Find ways to help the eczema flare-ups recede as quickly as possible.
Date: Tue, 13 Aug 1996 16:20:14 From: Robert
Ignatius, from my own experience, the causal affect of a flare up may
be not only hard to find, but can vary from known factors to unknown factors.
Therefore, I am hopeful that there is a specific (or a set of specific
factors) which you can eliminate, but be prepared for that not being the
case. There may also be other triggers such as stress, etc., which are
also hard to pin down and/or eliminate. For me, sometimes UV light treatments
help (only sometimes) while for others who have posted to this list they
are of negative value. The important thing is to pursue all your ideas
and give support to your son who may have to learn to deal with these flare
ups periodically throughout his life....it can also disappear just as quickly
as it appears and not reappear for long periods or forever.
Date: Tue, 13 Aug 1996 13:41:34 From: Wren Subject: Reply to Steve's
2 CHT postings
Well, yes, there is hope. I'm a living example. My skin looked like
hash last Christmas. Now my eczema is barely visible. But each person has
to find what therapy works for themselves; CHT works for me.
To find a good qualified practitioner you have to become a detective.
Call acupuncturists. Ask them who if they know anyone who is EXPERT at
using Chinese methods on skin problems. Ask if they use Chinese herbs,
or for an expert, experienced, licensed herbologist. Then when you think
you've found a qualified doctor, ask them about ALL of your concerns. Ask
for patient references. Ask yourself if you feel comfortable with this
doctor. My doctor, Dr. Yu, also teaches. Maybe a local acupuncture or herbology
school could lead you to an expert.
I don't know of any dermatological acupuncture associations or lists.
And, as we've discussed on the list just recently, one person's heroic
doctor can be another person's bad experience. You've got to judge for
yourself.
I've had acupuncture for various maladies from a number of different
practitioners over the years. I only took CHT before for menstrual difficulties
(with a different acupunturist than Dr. Yu), and it worked for me then
too. But I've had gone to a couple of inexperienced acupuncturists who
were not effective. In short, in my experience, the more experienced the
acupuncturist, the better the treatment.
CHT might work for you, and it might not. I have no idea. According
to Dr. Yu, it can work with everyone, however, it does take longer to work
in people who have used steroids. According to the CHT studies done in
England, if memory serves, it worked 60% of the time on the patients who
had had no success with any other treatment.
Since we all have different symptoms, it may not be useful to list all
the changes. I, for example, had a terrible time sleeping. Dr. Yu put some
herbs in my mix to help me sleep. I now get a full, deep 8+ hours each
night. The sores are gone all over my body, except slight cracks on my
hands. Both my inability to concentrate (due to) and my constant itching
are gone.
Date: Sat, 17 Aug 1996 09:40:40 From: Gillian Subject: pollen connection?
Hi Brenda I find the sunlight really helpful to my eczema. In my case
the eczema generally comes back towards the end of winter (this is where
we are now in South Africa). Somehow wearing warm clothes all the time
seems to stop it from being able to "breathe" so it gets worse for me as
winter progresses. I try and expose it to as much sun as possible over
weekends and find that does provide some temporary relief. Better still
is sunlight combined with sea water. (Usually when you get this combination
you would also be unstressing which is also beneficial). Come springtime
and I have a dietary cleanout - avoid coffee, alcohol, sugar and acidic
foods - spend time in sunshine and sea water....... that is when I manage
to clear it up again for a few months.
PS- My dog gets eczema too! She gets it in summer really badly. I think
in her case its a grass allergy as she gets worse after walks in the long
grass.
Date: Sun, 18 Aug 1996 13:31:55 From: Sarah Subject: Hello
Sophie, my 5 month old, has eczema. From birth she had itchy skin that
seemed to come and go but 2 weeks ago she had a nasty flare up and we were
given lots of creams and told not to give her any dairy products. I had
fed her a packet vegetable hot pot thingy that had milk powder in it and
the Dr seemed to think that this had caused it. So now I have also given
up dairy products as I am breastfeeding . I'm not sure if this helps but
it gets rid of my guilt.
I had also been using Eucerin lotion and aristicort o.2 daily but have
not used it for the last 2 days and she seems to be getting better. The
medication appeared to be irritating her skin and I have also had a rash
on my hands. Is there a connection I wonder?
As we live in a very humid and hot environment we use aircon a great
deal and I am trying not to let the air get too dry. Could the pollution
be the problem? Sophie's problem does not appear to be as serious as some
I have read about but I am nevertheless worried and being a new mum am
slightly manic about it.
Date: Sun, 18 Aug 1996 10:28:24 From: Teri Subject: Children with eczema
I also have children who suffer with eczema. It breaks my heart to see
them uncomfortable, and itchy with raw sores on their otherwise beautiful
skin. My daughter has had eczema since she was 3 months old. I have searched
and searched for the "wonder cure" but I am coming to the realization that
it doesn't exist--yet. I will still keep looking and hoping but I guess
you could say I have become realistic. My main focus now is to keep my
kids as comfortable as possible and to help them to deal with this disease
from a psycological aspect.
Does anyone out there have suggestions on how to deal with the psycological
aspect of this disease in children?
As far as the treatment of eczema- I can give you a few suggestions
that have helped my kids. To moisturize the skin OINTMENT such as Aquaphor
is better than cream such as Eucerine. I was told by an allergist that
this is due to the alcohol found in creams (the alcohol is an emulsifier
that is found in all creams and makes it creamy) The alcohol is drying
to the skin.
DOMEBORO solution also helps to keep them comfortable. It comes in a
powder which you mix with water and place on the skin with compresses.
We use a cloth diaper which holds a lot of moisture.
With the steroids (which I try to avoid) I use the OINTMENT type triamcinolone.
Also I am wondering about the "vegetable hot pot thingy" you talked
about I'm not sure if I know what that is but you may want to check the
label for preservatives or MSG. Both of my kids are sensitive to foods
which contain lots of chemicals.
Date: Sun, 18 Aug 1996 21:23:38 From: Stephen Subject: Clothing
I understand that the best material to wear to avoid irritation to eczema
is 100% cotton. Can anybody tell me if this is correct or of any other
materials that do not irritate the skin
My son is due to start school in Sept and is required to wear school
uniform. and we are having difficulty in finding pure cotton school trousers.
Date: Mon, 19 Aug 1996 04:56:56 From: Alan Subject: Cotton clothing
Try a company called 'Cotton On' who are based in Bath (Monmouth Place,
BA1 2XF). Telephone 01225 461155, Fax 01225 461464. They have an extensive
range. The company was started in 1980 by Dorothy Clark who's young daughter
was a sufferer.
I don't know about other materials but my family have found that cotton
is preferable to any other material. We once bought some 'pure cotton'
underware for my daughter (not from Cotton On) and were surprised that
she had a reaction where the seams touched her skin. We checked and found
that although the body of the clothing was 100% cotton, the seams were
finished with a synthetic thread - hence the problem. personally, I have
never been able to wear woolen garments that may contact my skin and many
synthetics make me sweat.
Date: Mon, 19 Aug 1996 09:51:22 From: Roy Subject: New subscriber :
Monika Chessa
Hi Monika I have exactly the same problem as yours, though not as bad.
I've had this thing for as long as I can remember but it wasn't always
in the form Palmo-Plantaris pustulosis. It used to be quite dry and itchy
behind my knees and the inside of my elbows.
Now I get these tiny little blisters along the outside edge of my hands
and the odd "biggy" on my palms. I've found that if I wear shoes that don't
let my feet breathe then I get the pustules appearing around the edge and
sole of my feet, so I always wear "buckskin" type leather. Doc Martin does
some good boots which, coincidentally, are currently fashionable. Other
than this I can't seem to find any physical reason why I get flare ups,
do you live in a hardwater area? Does it get worse when you move house?
(mine does), or when the weather is hot (and you perspire more).
I use a combination of Alpha Kiri bath oil, Unguentum Merk and Dermovate.
I think the last two are the only things which keep my hands under control.
I've found that Doctors are hesitant to subscribe Dermovate (if they don't
know you) as it is a potent steroid, but if you patronise THEM a little
and make sure they know that you know how to use it you'll be ok.
For me one or two days application of the Dermovate causes the blisters
to dry up and I spend the rest of the week picking at hard dry skin (hence
the Unguentum Merk). I hope this all sounds familiar, I think the pustulosis
is one of the more socially embarrassing forms of eczema, when it first
started it really freaked me out, I kept (sorry to gross you out) bursting
my finger and thumb hoping it would go away but it just got damper. I kept
my hands in my pockets all the time and would avoid shaking hands with
people.
The Betnovate I was using did no good unless I used it in vast quantities,
my skin got so thin in places that at a gig once I clapped so hard my skin
broke and started to bleed. The Dermovate was a Godsend it may be more
potent but I don't use a tenth of what I used before and I just use it
in very localised areas.
Sorry this is such a long and disgusting e-mail but I figure what the
hell, let it all out.
Date: Mon, 19 Aug 1996 09:40:40 From: Brad Subject: pollen connection?
Brenda, like Gill the sunlight appears to have a beneficial effect on
my eczema. The sunscreen I use is manufactured by "Banana Boat", and my
skin doesn't seem to mind it. Actually my skin does the best during the
summer months. Like with Gill it becomes problematic during the winter.
Date: Tue, 20 Aug 1996 13:36:31 From: Alicia Subject: pollen connection?
I used to think that sunlight was good for my skin too. Every summer
any eczema or dry skin that I had during winter just cleared up. In fact
it was one of the reasons why I moved - because I thought that the tropics
would be good for my skin. But it's been worse up here than it has anywhere.
Now I'm looking forward to going to a cooler climate again.
Date: Tue, 20 Aug 1996 10:25:57 From: Roy Subject: Long term cycles
I heard some-where that hay-fever and some other allergies work in long
term cycles active for 7 years dormant for another 7 years. Has anyone
noticed the same with eczema? I've had it for as long as I can remember
but I do remember periods when it was dormant but they coincide with years
when I wasn't living in England so I can't be sure.
Also my eczema has changed location and appearance over the years, when
I was about 4-7 it was behind of my knees and elbows and very itchy. Then
it vanished when I went to live abroad. On returning to England it reappeared
for a time around my mouth, especially the corners, I was about 11 or 12.
I now live in a hard water area in the south east and it concentrates it
self (after disappearing for a time) on my hands, and looks nothing like
it did before. I still get flare ups of the original form under my bottom
lip and my back where my belt rubs. My "normal" eczema is dry and scaly,
while the type that appears on my hands starts of as tiny pustules which
dry and crack as I treat the area with Dermovate.
I wonder if the doctors are making a mistake by grouping dermatitis
and eczema into one area. My wife sometimes gets a red rash at the edge
of her scalp and the bridge of her nose, is this eczema? How can one disease
have so many different symptoms? Is it even a disease? Is it purely an
allergic reaction?
Date: Tue, 20 Aug 1996 09:50:54 From: Roy Subject: Ken
The symptoms you describe sound like eczema, but, as you say, this term
encompasses a whole medical text book of skin problems. One possibility
for the cause is not an allergy to the gloves themselves but to the bugs
that live in them. Dust mites live of human skin and their waste products
are thought to cause a number of allergic reactions include asthma and
eczema. You can go for years without any problem then suddenly have a reaction.
Thinking back, I remember that my hands got particularly bad after buying
a pair of thinsulate gloves for winter cycling.
Date: Tue, 20 Aug 1996 09:13:16 From: Gordon Subject: pollen connection?
I've wondered if I have become allergic to pollen. The thing is that
I have never had a problem with these types of allergies. I understand
that the human body changes over the years, and that a person could eventually
become sensitive to this.
I don't suffer from the typical pollen allergie, I.e. sinus problems
that I know of. Occasionally my eyes get itchy, and my nose gets a little
stuffed up, but thats it. I've noticed that alot of people in this group
do in fact have the 'hayfever' type of allergy. I've had eczema for 3 years
now.....its always been a problem in the winter time(dry air), but the
summers were OK.
I run alot and in past summers I would get a fair amount of sun. This
summer is different.....I've suffered with eczema like the winters. Something
has changed, and I don't know what. I now drink distilled water, bathe
for only a short time with barely warm water, use a good quality moisturizer
after showering, and I don't eat foods that I 'think' cause flareups, like
chocolate, tomatoes, garlic. I don't know, I'm as confused about this stuff
as the rest of us.
Date: Tue, 20 Aug 1996 18:14:16 From: Steve Subject: Odor-Less Ubiquitios
Mold. Torture
I got the shivers when I read about your apartment being "Terribly moldy".
Mold allergies can be almost devastating depending on you and the kind/degree
of mold. Of course I don't know if you are allergic to mold, but I would
immediately do everything possible to find out and then reduce in every
way possible, the mold in your apartment.
STORY ONE I moved into a new apartment which was moldy. I immediately
began suffering. I had to stay there for a while until I found a new place.
While I was suffering I scrubbed all the walls with a solution of vinegar
and a little detergent, washed the little stinky drapes and mopped the
floor with the same solution. I found a huge relief. The doctor had recommended
vinegar.
ST0RY TWO I put on a shirt that had been in a drawer for a month or
so and within five minutes I felt like fire-ants were all over my torso
and welts began to rise. As soon as I took a shower I got immediate relief.
I took some antihistamine and in about a half hour I was almost comfortable.
I had sniffed the shirt, and had noticed a musty odor, but I don't think
you can always count on smelling the offending mold.
COMMON SMELLY EXPERIENCES Our noses play tricks on us when we have been
in one place for a while. We become accustomed to our home's smells and
don't notice them, until we leave for a long time and then return. But
we do notice the different smells of other people's homes. The same is
true of cars', stores', movies' air-conditioners. Sometimes I become uncomfortable
with no noticeable odors. Sometimes I notice the odor. If a store smells
I stay out.
FIX-IT So...... wash everything with vinegar and a little detergent,
including the air-conditioning filter. If there is anything contributing
to the dampness in your apartment, fix it. If you don't have air-conditioning,
let the breezes blow through your well dusted apartment or use fans to
prevent stagnet warm air pockets where mold is more likely to fluorish.
If you are storing anything in the apartment, get it out. The less stuff
the better. If you have a carpet, remove it. Have a bare bedroom that you
can mop with vinegar. If you find any other mold controlling techniques,
let us know.
A MOVING CONFIRMATION If you find out that you ARE allergic to mold
you are not sure of the extent of the problem, leave the apartment for
two or three days making sure you go into a dry mold free atmosphere. If
you feel better you know you had sentenced yourself to an apartment of
torture and the longer you stay there the more you will inflict yourself
with torture.
If all this is to no avail, at least you will be able to cross mold
off your list and go on to other trials. That will be a major accomplishment.
When you finish the trial you will have done your spring cleaning a little
early.
Date: Wed, 21 Aug 1996 16:06:51 From: Roy Subject: Chinese Herb Tea,
Treatment vs Affectiveness database
A note on CHT, Monika wrote: "I have tried the Chinese herbs but with
no much luck. It seemed to cured it at first but after seven weeks of VERY
expensive treatment I wasn't getting very far. At the end I had to give
it up."
I guess like everything else, alternative medicine only works on some
people. Like me, Monika has Palmo-Plantaris pustulosis and perhaps Chinese
herbs are unaffective on this type of eczema only.
Date: Thu, 22 Aug 1996 12:30:02 From: Alicia Subject: Long term cycles
A girl I meet last Christmas said that she'd had eczema all through
her childhood, then went to India for a few months - where it cleared up,
and doesn't get it at all now (5years later). Also my eczema has all changed
form and position - although I've just thought that it just a matter of
extent of reaction. The old dry scaley eczema would weep if it got bad
enough, now that I live in a hotter climate and my skin is always moist
- it's more the weepy stuff, and only becomes dry and scaley after the
rash has appeared and the damaged skin is coming off. Do you think it's
something to do with our modern society's - chlorinated water, air con
and central heating, etc... that is making up hypersensitive?
Date: Wed, 21 Aug 1996 17:25:20 From: Steve Subject: Doxepin side effets
fade?
Drew, Sorry to hear of Doxepin's side effects. At the moment I am taking
D with prednisone, so I cannot tell if the drowsiness will be a problem,
but it does relieve itching. I am hoping when I get off prednisone, I will
not have the side effects. My dermatologist said the side effects usually
fade with continued use after about two weeks. How long did you use D?
Date: Thu, 22 Aug 1996 12:11:20 From: Sarah Subject: prickly heat
I'm still persevering with nothing except for Aqueous ointment which
at least seems to have a soothing affect. However, a friend was looking
at Sophies rash the other day and suggested maybe it was prickly heat.
The rash is worst on her chest and chin. Is there a connection between
eczema and prickly heat? I know that in Thailand people and babies are
covered in either talcum or prickly heat powder after baths or swimming.
Date: Thu, 22 Aug 1996 16:43:53 From: John Subject: New subscriber
My interest is due to my daughter (20 months old) who has been suffering
from severe atopic eczema from about 9 months of age. She has been treated
by a homoeopath since December last year. The treatment seems to be helping,
but it's been a long and painful process, and I confess to having severe
doubts about the homoeopathic method. Can any of you report successful
homoeopathic treatments?
My biggest problem with the homoeopathic treatment, is that it does
nothing to provide symptomatic relief, and excludes the use of conventional
topical medications such as antihistamines and steroids. I would be interested
in hearing of other alternative treatments which might relieve her suffering.
Date: Fri, 23 Aug 1996 11:34:25 From: Alicia Subject: Chlorine and
Vinegar
I've just bought a chlorine filter shower head. In the package came
a whole lot of documentation about the effects of chlorine. It said that
more chlorine is absorbed by showering and breathing in the vapour than
across the skin in a bath, or by drinking it in drinking water. Despite
that however, chlorine in the drinking water is poisonous and at high rates
has been shown to produce cancer, high blood pressure, malfunctioning liver,
and allergies....
Another tip someone else gave me about restoring skin condition is to
add vinegar and a dash of bath oil to a luke warm - not hot - bath. The
skin's protective layer - which guards against infections - is slightly
acidic, and vinegar in the bath maintains the acidity which chlorinated
or hard water may not.The bath oil stops the water drying the skin out.
Anyway having just read about the chlorine vapour from showers, and the
fact that bathing is actually better than showering - I've been giving
it a ago and can report that it's been wonderful. (I always loved a good
bath!) My skin is soft and supple and not so itchy on the dry eczema patches.
I recommend it.
Date: Fri, 23 Aug 1996 02:03:30 From: Julia Subject: New subscriber/alternative
remedies
I have a daughter aged 8 who has severe eczema. We tried using homeopathic
treatment when she was about 3 and I regard it as a disaster of the months
we used it her eczema and general health deteriorated somuch that she could
not walk and was exhausted all the time.
Since then we have used topical steroids/oil of primrose which work
a bit, though not spectacularly well and she has frequent and severe flares.
We have tried a variety of other "remedies" - Chinese herbal tea, porridge
in the bath, every emollient we've heard of - to no avail.
The treatment I have found most useful is wet wraps.
Date: Fri, 23 Aug 1996 21:14:39 From: Brenda Subject: Homeopathy
From what I've read since I've been on this list, homeopathic treatment
does not have much of a record of success with eczema. I've tried it myself,
desperately believing that it would work, but the effects were negligible
and any change in my skin was probably only due to the normal fluctuations
in eczema.
Date: Fri, 23 Aug 1996 17:46:53 From: Roy Subject: New subscriber:
John
Hi John. I have been using topical steroids for much of my life (I'm
now 25). I have had several remissions so the use hasn't been constant,
and my eczema is very localised so I don't have to use great quantities.
I started on Betnovate which is a relatively mild steroid but as I have
gotten older and my eczema has changed it's characteristics (from dry and
itchy to weeping blisters) I have had to use more potent steroids. I am
now using Dermovate ointment, and a lot of Unguentum Merk emollient. I
am quite careful with it and always give my skin a break from it when the
cycle is at it's most inactive. I've found that constant use does thin
the skin quite dramatically hence the precautions.
Without the Dermovate the flare ups are quite vicious they leads to
broken and bleeding skin which begins to heal and then flares up again.
With the Dermovate which I use as soon as I see the signs of a flare up,
the pustules dry up and the skin gets hard like a callus. this eventually
cracks and peels like a scab, the skin below heals slowly and I stop using
the steroid. Another flare up usually doesn't occur for a couple of weeks
enough time for the skin to heal completely. This is a much better state
of afairs than constantly damaged skin.
This regime has kept me relatively free from big flare ups without any
of the serious side affects. I feel that there is no such thing as a "safe"
medication and you have to take precautions as with every thing else. With
a little knowledge you can safely use topical steroids in the long term.
However, topical steroids will never cure the problem.
Date: Sun, 25 Aug 1996 14:12:02 From: Samantha Subject: New subscriber
I will tell you about my experience with homeopathy but please note
- everyone reacts VERY differently to different treatments. What works
for one will not work for another.
I have never had good reactions to homeopathic treatment. And I have
not met anyone who has had success with clearing, stabilising or lessening
their eczema. I went on a homeopathic regimen last year and ended up at
the A&E (ER) crying for some cortisone. My falre up was so chronic
that I had not slept in six weeks - the itching was unbarable.
I put it down to the*idea* of homeopathy - ie like treats like. I presume
that I was given drops containing substances which I was reacting to -
this was in an attempt to "help" my system tolerate them or learn how to
propertly react to them. All I did was get very sick. Now - I am not saying
that this will happen for everyone. AND I could have the theory behind
homepathy buggered up but it did not work for me and I will never try it
again.
There was one plus to come out of the months of hell and that was the
diagnosis of a candida infestation which I am currently overcoming and
the results in my skin are amazing.
Date: Sun, 25 Aug 1996 12:21:58 From: David Subject: Sacs of inflammatory
fluids
When the weather turns hot and humid I get small bubbles of fluid under
the skin on my fingers. These are very itchy and easily become inflamed
if I give in and scratch them. I assume they are "prickly heat" (that is
sweat that cannot escape) and not related to eczema, but I could be wrong.
I find that calamine lotion is the best treatment as it soothes away
the itch, together with an emollient and maybe an antiseptic if required.
Date: Mon, 26 Aug 1996 00:10:59 From: Gary Subject: Doxepin side effects
fade?
My experience is that Doxepin side effects (drowsiness) fade within
a month, if not sooner. One solution is to take it before you go to bed.
You should then continue to see some benefits during the day, but without
the drowsiness. When itching becomes severe, you can then take a lesser
amount of doxepin or atarax (cousin of doxepin) during the day as needed.
Date: Mon, 26 Aug 1996 12:01:29 From: Alicia Subject: Chlorine and
pH levels
I always put a little vinegar in the bath these days. It seems to lessen
the itching and be generally good for your skin. The skin is slightly acidic
and chlorinated and some hard water is can be slightly alkaline.
Date: Mon, 26 Aug 1996 10:34:02 From: Mitch Subject: Chlorine and ph
levels
But isn't the vinegar acidic?
Date: Wed, 28 Aug 1996 09:49:43 From: Alicia Subject: Chlorine and
pH levels
>> But isn't the vinegar acidic? <<
Exactly and it maintains the acid mantle of the skin. This protects
the skin against infection. Alkaline water breaks the acid mantle.
Date: Mon, 26 Aug 1996 12:06:23 From: Michael Subject: New subscriber
I am sorry to have to say that, from my observation of the postings
on this list, homeopathy does not seem to have much of a reputation. That's
to say I have not detected any enthusiasm from those on the list who are
using homeopathy as a means of curing eczema.
Date: Mon, 26 Aug 1996 10:17:43 From: Ken Subject: Opening
I have a few spots on my chins and behind my ears. They have been scratched
open. Two of them are as big as capital letter O. I want them to heal before
they open up even bigger. I have been using Hydrocortisone on them. Alternatively,
use Diprosone for 3 days and back to Hydrocortisone. On top of it, I also
use lubriderm. Before bed, I put Sarna anti-itching lotion on them. I also
take atarax at bedtime. I just finished my 10-day antibiotics. Any suggestion
on this matter?
Date: Tue, 27 Aug 1996 09:38:20 From: Samantha Subject:
Opening/antibiotics
Ken, I will just jump on my "death to antibiotics" bandwagon for a moment!
If you have taken antibiotics you may need to help along your gut bacteria
which would have been killed off by antibiotics (thus allowing candida
to proliferate). Acidophilus is avavilable from your health food shop and
this will assist as will removing all fermented foods from your diet.
Date: Mon, 26 Aug 1996 21:39:33 From: Ann Subject: Nan's daughter
Nan, I'm sure you've tried it, but pure petroleum jelly (vaseline) has
a good track record as a non-allergenic moisturizer. It's the only thing
I've found that doesn't bother me and also truely holds the moisture in.
I used to think I was allergic to anything that itched or flared me out
when I applied it. Now, I know that sometimes just touching the skin will
set it off and that in the long run the vaseline helps albeit with stained
clothes and a greasy look.
Date: Tue, 27 Aug 1996 10:50:58 From: Roy Subject: Sacs of inflammatory
fluids
David, Sounds to me like you've got Palmo-Plantaris pustulosis. Which
is a type of eczema which appears where the skin is thick and is prone
to sweating i.e. the soles of the feet, and palms of the hands and edges
of the fingers. I use a potent steroid ointment on it for a fast solution.
And emollient keeps it away once the steroid has done it's stuff. These
areas are also prone to emotional sweating so stress can be a factor. If
you find an affective fast treatment I'd love to know.
Date: Tue, 27 Aug 1996 17:34:17 +-100 From: John Subject: Homeopathy
Sam and Julia both reported a severe deterioration after commencing
homeopathic treatment. Do you believe that this was caused by the treatment,
or merely a result of the cessation of conventional therapy?
The reason I ask, is that from a chemical point of view, there is absolutely
nothing in a homeopathic medicine apart from distilled water and alcohol.
The original solution derived from the active ingredient is diluted to
the point where the odds are millions to on against encountering a single
molecule of the original substance. Hence the reaction a person with an
essentially logical and scientific world view such as myself would expect,
is no reaction whatsoever.
So I would regard any reaction whatsoever, even a negative reaction,
as being encouraging evidence that there is something to homeopathy apart
from wishful thinking and placebo effect.
The whole field of homeopathy is impossible to evaluate objectively.
It is either a revololutionary and miraculous form of healing which forces
us to rethink our entire world view, or a load of dangerous nonsense. I
have no doubt that the homeopaths I have spoken to are very sincere and
committed people. They say they have no need for scientific validation
of there method. They cure people every day (so they say), so what more
proof do they need? However, they are quick to take credit for an improvement
in a patients condition, and when the treatment is ineffective, this is
because they 'have not yet found the correct remedy for the patient', or
because the patient gets fed up with the slowness and ineffectiveness of
the treatment, and gives up.
Homeopathy is concerned with finding an ultimate cure for the disease
(or dis-ease as they say), and ignoring the physical symptoms, no matter
how much discomfort they may cause. Conventional medicine on the other
hand, is concerned with relieving the physical symptoms of what they believe
to be an incurable and chronic malady. Unfortunately the two approaches
seem to be incompatible - I wish that a middle road could be found.
Our homeopath has also told us some things that I regard as contentious
and worthy of discussion in this forum:
-
That the link between infantile eczema and asthma in later is often the
result of the use of steroid creams on infants. The theory is that the
eczema is the outward appearance of an inner imbalance, or dis-ease. The
steroid creams repress this manifestation, pushing the dis-ease back into
the body, instead of releasing it as homeopathic treatment aims to do.
The end result of this repression is that the disease manifests itself
in later life, typically as asthma or hayfever. Revolutionary medicine
or bunkum?
-
That infantile eczema can be caused or aggravated by inoculations, which
can also provoke other dangerous side-effects such as infant seizures,
which the doctors are not telling us about. Our homeopath also claims that
our daughter Eimer's condition was aggravated and possibly caused by vaccinations
which my wife had when she was pregnant with Eimer, but before she knew
she was pregnant.
Before I get off the homeopathy buzz, a good news story. My wife's cousin
has 5 children, 3 of whom are boys and all suffer with severe eczema. She
took them all to a homeopath after years of trying everything else. All
three boys responded to the same remedy, and have remained clear for over
three years now.
Date: Tue, 27 Aug 1996 09:58:54 From: Brad Subject: New subscriber
I also have the same type of eczema that you and Monika have. I didn't
realize that it had a name. The eczema on my feet seems to be related to
a fungal infection I also get on my feet. It took the dermatologists I
saw months to figure this out. For me I've found Mycolog cream to work
best (at least for my feet). I use Temovate (.25%) on my hands which seems
to keep the eczema under control. The sun also helps my skin.
Date: Wed, 28 Aug 1996 09:28:26 From: Alicia Subject: Hey, Another
Alicia!
Does your Alicia ever get thrush? If so maybe you should talk to your
doctor about anti-fungacides and maybe also supplement her diet with zinc
and digestive enzymes. It would make sense if the eczema is bad in hot
weather and after swimming. My infantile ezcema also cleared up when I
was about 3 after my family moved out of town and onto rainwater collected
in a tank. I didn't get eczema again until I was about 19, although I've
always had asthma and have been allergy sensitive. So maybe a water filter
for your shower would be good.
I reckon it's worth a try.
Date: Tue, 27 Aug 1996 22:34:26 From: Mark Subject: homeopathy/alternatives
My own experience with the homeopath has been less-than-perfect; and
it seems most if not all of the people on the list who have tried the homeopathic
approach report similar results. (However, the sample size, less than 120,
is hardly enough for a scientific conclusion.)
Certainly, my homeopath has taken the point of view that eventually
he will find a 'cure' for my eczema, and I can continue visiting him at
no charge until he gets to the root of the problem. The problem here, as
John indicates, is that this approach gives the homeopath a perfect out
-- when a patient quits in frustration, the homeopath can claim he didn't
try hard enough.
From what I've seen so far, efforts to test the homeopathic hypothesis
scientifically (including taking into account the approach's claims of
indivduality in care) have failed. That does not mean homeopathy does not
work for some if not all. Since there is 'nothing' in the homeopathic remedies,
it does no harm to try.
My explorations into alternative therapies will shortly move into 'environmental
medicine'. When I told my dermatologist about this, his eyes turned. He
said the environmental physician will likely say I have a yeast problem.
But since the environmental physician is also an MD, he has no objection.
(He does, I believe rightfully, object to experimenting with Chinese herbal
remedies, pointing out that they may be effective because of untested drugs
that may be stronger than the steroidal perscriptions.)
I certainly believe we should keep our eyes and minds open. Medicine
is not a pure science, and eczema, we appreciate, is a vexing and irritating
problem.
Date: Tue, 27 Aug 1996 23:05:47 From: Nan Subject: Nan's daughter
Dear Ann, Thanks for the suggestion. We have used Vaseline and put up
with the greasy feel. Right now, we are having a go with mineral oil. I'm
afraid to see what will happen when my daughter hits puberty.
Date: Wed, 28 Aug 1996 13:18:25 From: Samantha Subject: Homeopathy
Good point John. However, prior to commencing the homeopathic treatment
the only conventional therepy I was using was small amounts of topical
steriods. Almost immediately (two days) after starting homeopathic therepy
I had a severe breakout which I could only, at the time, put down to the
therepy. I was warned by the homeopath that I would get worse before I
got better but a few months of pain and itch and sleeplessness was too
much for me to handle. The fact that the glands in my groin were huge didn't
seem to faze the homepath but it sure scared me.
It could have been the alcohol in the solution that I reacted to.
Even so I don't *completely* disbelieve the idea. I think that there
is some credence to the "like cures like" concept (hair of the dog anyone?).
Date: Wed, 28 Aug 1996 02:13:00 From: Gary Subject: Nan's daughter
I put vaseline on *before* entering the shower. I find this helps maintain
the body's natural oils which, of course, are the best for maintaining
skin quality. An important property of vaseline (as opposed to mineral
oil or Aquaphor I think) is that it doesn't get washed away by hot water.
After the shower, instead of towel drying I just put on a terry cloth robe
until I'm dry. This also minimizes removal of natural body oil.
I have used this program for the last six months and am completely convinced
that it works (it was recommended to me a my dermatologist, the best doctor
I've ever had). The program has allowed me to virtually eliminate use of
steroid ointments, which I had used daily during the previous ten years.
I am also now experimenting with drinking flax seed oil, a fatty acid that
the skin loves, as suggested by numerous people on this list. As for puberty,
my impression is that your daughter's eczema is more likely to improve
than worsen once she reaches that stage. However, she may get the eczema
back in later years (usually after age 30; but by then treatments should
be much better).
Date: Wed, 28 Aug 1996 11:29:31 From: Gill Subject: New subscriber
Hi Jeff I read somewhere that the most common allergic causes of childhood
eczema are dairy products and eggs. Has she started drinking cows milk
since she stopped breastfeeding?
Date: Wed, 28 Aug 1996 13:30:29 From: Nan Subject: Nan's daughter
Thanks for the strategy tip. We have not used that approach before.
We will have to try it because we seem to have had another outbreak.
Does anyone else have problems after swimming? I know that Alicia's
mom mentioned that she did? My daughter's skin is raw after dipping in
the ocean. She has the same reaction whether she swims in pools or ponds.
Date: Wed, 28 Aug 1996 11:37:17 PDT From: Ken Subject: Vaseline
What an intriguing idea, to put on Vaseline before showering! I'm going
to give this a try. I enjoy exercise so I usually shower every day. I've
been using moisturizing lotions after showers, but found that this is a
mixed blessing because I'm allergic to wool and every moisturizing lotion
and bath oil I've found contains Lanolin. My skin feels a little better
after I drown it with Eucerin, but it is red and irritated at the same
time.
I noticed that if I don't shower after every workout, my skin feels
better, but walking around with dried sweat can sometimes present its own
problems.
If I may ask, how much vaseline do you put on? Do you put it only on
areas where you have eczema or anywhere where your skin is dry? Do you
use vaseline before showers everytime you shower or only occasionally?
I would imagine that putting vaseline on before showering is somewhat
equivalent to covering up the skin under the vaseline so that area is essentially
not washed. This sounds a lot better than not washing the whole body.
Date: Wed, 28 Aug 1996 15:49:38 From: Shelley Subject: Girls hitting
puberty
Nan: Many women with eczema improve when they hit puberty (including
myself) so look forward to it, rather than being afraid of it. My theory
is that female hormones are good for many women with eczema. Many women's
skin gets worse when they go through menopause, which supports the same
theory.
My skin was horrible from birth till puberty at age 14, then was pretty
good until age 28 when it returned with a vengeance. (That's 14 years bad,
and 14 years good, which seems to follow the long-term cycle theory someone
proposed.) Now it seems to be on a 7 year cycle, since it improved at bit
at age 35. I'm now 39, so I assume that in 3 more years or so I will go
through hell all over again.
Date: Wed, 28 Aug 1996 17:44:27 From: Gary Subject: use Vaseline before
showing?
My dermatologist advises against heavy exercising when I have a significant
eczema flare, as the sweat irritates the skin. However, you can still do
low impact, non-sweat-generating exercise like brisk walking.
I put vaseline on all over my body. I go through a 13 ounce tub about
every 3 or 4 weeks (but Vaseline, in addition to being a great lubricant,
is also cheap). The all-body approach is a preventative, not a treatment.
It prevents the skin from getting dry or irritated enough to break out
in eczema. I put vaseline on almost every time I shower. I am sensitive
to the fact that I may not be getting as clean and so, about once a week,
I put it on *after* I shower, making sure to clean really well.
I point out that showering every day is an artifact of the current half-century.
Throughout all previous history, most people felt that showering/bathing
once a week was good enough. Recently, I came across a report written by
an army camp commander in the late 1800s. He said he was most impressed
with the clean habits of his men because they bathed once a week. In any
case, I was originally concerned that I might not get clean enough (using
vaseline) to remove bacteria leading to infections in the skin. But so
far this has not proved to be a problem. The real problem was that before,
I was using large amounts of steroid ointment and this was depressing my
skin's natural immune system, leading to infections. Since I started using
vaseline as described, this problem has cleared up.
Date: Thu, 29 Aug 1996 09:51:05 From: Samantha Subject: Girls hitting
puberty
Sorry to be a naysayer but my skin was at its worst at puberty. It was
a hell of a time for me (perhaps a little easier than some as I went to
girls only schools). Puberty is an already bad time and having a face like
raw hamburger was so distressing. I remember telling some people that I
had been in a fire to explain the rash.
Some days I would weep at the thought of having to go to school and
get on the bus with people staring. My mother would never let me stay away
from the cruel eye of the public and I do not know whether this was a bad
thing or not. I know that I just desperately wanted to stay in my room
with my books.
I think that the decision whether or not to allow your daughter to 'hide'
is a deeply personal one. I do not know if my life would be any different
if my mother had allowed it (and as far as I am concerned not an avenue
worth exploring - what's done is done).
Now I can make those decisions for myself and I do hide away when my
rash is bad. It is easier. Not only becuase I hate people staring, it is
simply becuase I do not feel very happy with myself, and I am in pain (this
must be remembered - it is not just a cosmetic thing this eczema - the
rash is *very* painful) and thus feel that there is no point in being with
other people.
Even though puberty for me was years ago I can remember it clearly.
I hope that your daughter does not suffer a worsening of her condition
during that time but hey, I survived it and I am as "well adjusted" as
the next idiot.
Date: Wed, 28 Aug 1996 20:57:27 From: Jennifer Subject: Girls hitting
puberty
When I hit puberty I had the exact opposite response. My eczema was
more weepy and covering 85% of my body, instead of the normal patches I
used to have. I still believe to this day that the medicines I was prescribed
had a lot to do with it being that I lost my hair as well.
Puberty is the worse time to be dealing with eczema and the ignorance
and torment children give to each other. This is the time in most peoples
lives when they learn to communicate and meet new people, eczema seriously
hindered my ability to do so. On a good note, at age 19 I am cleared except
for just three small patches and a few scars and considered to be relatively
normal :).
Date: Thu, 29 Aug 1996 08:27:24 From: Sarah Subject: Cows Milk
Jeff, If Alicia is drinking cows milk (Gill's note) then perhaps you
could substitute that for soya milk or soya based formula. My Doctor suggested
the following three; Isomil,Prosbee or Allsoy. I use the occasional bottle
and Sophie (6 months) loves it. We have also eliminated all dairy products,eggs
and yeast . The Dr also suggested not swimming which is not that helpful
but now we shower immediatly after. Sophie's skin is definitely improving.
Date: Wed, 28 Aug 1996 21:38:25 From: Donna Subject: use Vaseline before
showing?
What about trying Bag Balm? Petrolatum with an antiseptic in it (but
it DOES have lanolin, for anyone who's sensitive to that). I find it's
wonderful when my hands are really bad, I just coat my hands and put cotton
gloves on at night before going to bed, in the morning my hand are smooth
and soft. It's really been helping a flareup I've been having on my eyelids,
too, as it has a higher "melting point" than plain vaseline, and doesn't
run into my eyes as it gets warm.
I've noticed that most pharmacies are starting to carry Bag Balm now,
one doesn't have to have a farmer friend pick it up for you at the local
Feed and Grain....
Date: Wed, 28 Aug 1996 23:16:03 From: Nan Subject: Girls hitting puberty
I had eczema pretty badly as a child. For a while, it tapered off, but
once I became pregnant, at 30, it returned again (although in different
locations). During every pregnancy, I was miserable with it, maybe hormones
and maybe diet because I also suffered from hyperemesis and couldn't eat
or drink for long periods of time.
Does anyone else have eczema in the ear canals? This is a really yucky
problem that creates a situation that is ripe for swimmers' ear, even if
you don't swim. I use ear plugs whenever I shower, but I still get it.
Unfortunately, many of the preparations that you might use for swimmers'
ear are not appropriate because they are so drying.
Date: Wed, 28 Aug 1996 23:22:37 From: Nan Subject: Girls hitting puberty
Sounds like a very rough time. I'm sorry. As I mentioned, I have three
daughters and puberty is something that looms not very far ahead for my
11-year old. I hope that things will improve for her, but we'll have to
see.
Children can be very cruel. This summer, while at camp, she had a girl
ridicule her because her face was flaking and she had flare-ups on her
arms and legs. It was very hurtful to her. Unfortunately, the camp director
did not have the presence of mind to get her to a doctor or call me because
it was worse than it had ever been and unresponsive to her medication;
she really suffered with it, unnecessarily. We'll be finding another camp
next year (if she wants to go).
Date: Wed, 28 Aug 1996 23:28:11 From: Nan Subject: Cows Milk
We also tried Nursoy as a formula for our children to try to avoid allergies
and eczema. I nursed all three of them until they were nearly two years
old. Early on with our first, our pediatrician advised me to refrain from
consuming dairy products because they might adversely affect my daughter
when they passed in my milk.
None of my children would drink Nursoy (or any other formula); primarily
the reason that I nursed for so long. Good luck.
Date: Wed, 28 Aug 1996 23:29:28 From: Nan Subject: use Vaseline before
showing?
Don't you object to the smell of Bag Balm? I have tried it on my hands,
but my husband and kids can't stand the way it smells?
Date: Thu, 29 Aug 1996 06:35:58 From: Donna Subject: use Vaseline before
showing?
It doesn't bother me....somewhat of a "medicinal" smell, but nothing
overpowering. The perfumes some of my office coworkers pour on themselves
bother me more...
Date: Thu, 29 Aug 1996 04:18:49 From: Julia Subject: Homepathy
I think that the deterioration in Esme's condition was most likely caused
by the withdrawal of conventional treatment. I don't think that homeopathy
did any actual harm.
I'm unhappy about using steroid creams - especially on Esme's face -
but it seems to be the only treatment we've found that is any use at all
and without steroid creams Esme's condition is so bad that her life is
a misery. She would be covered from head to foot with infected eczema and
be completely exhausted and miserable.
I do find wet wraps very useful as it does seem to mean that lower steroid
strengths are more effective. The only down side (apart from the fact that
it is time consuming) is that the eczema on Esme's face has become worse.
Psychologically this seems to affect her less than eczema on her limbs
because she can't see the eczema herself so easily. She is 8 and as she
gets older she will become more aware of the skin on her face no doubt.
I hope that puberty has a good effect on her skin.
Date: Thu, 29 Aug 1996 16:39:24 From: Ann Subject: ear canal eczema
Yes, I have eczema in my ear canals. Dried skin builds up there similar
to ear wax in a normal ear. (I was told that I have no ear wax because
I scratched out the wax glands). At its worst the eczema there got badly
infected and spread to the ear drums. At that particular time the rest
of my skin was in good shape, but I spent so much time digging in my ears
that my life wasn't normal. The buzz from the scratching was the heaviest
I have ever felt anywhere. When I banished QTips forever from my house,
the ear canal eczema got a lot better; I was afraid I was going to lose
my hearing.
Date: Thu, 29 Aug 1996 21:54:36 From: Gayle Subject: Nan's daughter
I found that mineral oil had the most unpleasant texture. I discovered
that the good massage oils had Sesame, apricot and other oils. I found
that those cooking oils worked much better. They are thinner and don't
leave a scummy feel.
After a while, I started adding vitamin E oil to a pint of sesame oil.
Doesn't cure eczema , but does cut down on dryness. If used on damp skin
after bathing, it disappears into the skin very quickly. This is a big
plus as silk blouses are my favorite.
Date: Fri, 30 Aug 1996 09:16:46 From: Wren Subject: Oils for Moisturizing
I used castor oil for a good year. My skin was so sensitive that seed
oils made me itch, but castor oil didn't both it. It is thick and sticky,
so had to either wait for it to soak in, or wear only certain clothes after
I'd applied it.
Date: Fri, 30 Aug 1996 13:13:08 From: Michael Subject: Prednisolone/Prednisone
Christopher: on 18 June you said you were on 40mg a day of Prednisolone.
Just wondered whether you managed to taper off or if not, what happened.
I have been luckier than you and am now down to 7.5mg day with no sign
of eczema returning. My derm said I should take up Chinese herbal treatment
if the scratch were to return - I shall know in a few weeks' time.
Date: Fri, 30 Aug 1996 14:52:38 From: Laura Subject: Help for my hands?
I have had eczema attacking my hands since last December (severely since
April). I've been to a couple of different doctors and have used the following
treatments: Elcon, Diprolene cream and ointment .05%, Bactroban, a shot
in the arm of some sort, and most currently Temovate E (along with lots
of moisturizer).
I'm getting discouraged. Is there anyone out there that is seeing a
Chinese herbalist or other form of non-western medicine? Also, I would
like to know if any of the women out there have noticed that their flare-ups
are related to their menstrual cycles. Mine seems to get worse when other
PMS symptoms appear and ease up ever so slightly after my period. Is there
any help for this?
Date: Fri, 30 Aug 1996 18:17:49 From: Nan Subject: New subscriber
I am surprised that a pediatrician would put such a little one on benadryl.
Obviously, it can make children very sleepy. This is good, if sleeping
is a problem, but if it isn't, you get a little kid with no energy.
My kids have used various cortisone prescriptions since they were very
young. They don't always work, but for the littlest two, they usually clear
up the eczema until the next outbreak.
You may want to switch him to Dove soap-fragrance free or Cetaphil.
Cotton clothes seem to help, as well.
Date: Fri, 30 Aug 1996 15:32:29 From: Wren Subject: Help for my hands?
When my eczema first started flaring, it would get bad before my period,
then improve greatly during and after my period. Then it switched completely,
and was bad during and after my period, easing up as the month went on.
Now that my condition has stabalized from using Chinese herbs, I don't
notice any fluctuation.
Hey gals, another menstrual mention. My cramping lessened during this
whole bout with eczema. My theory is that the Evening Primrose oil and
other supplements I've been taking along with my improved diet has also
helped my cramps.
Guys, keep this in mind in case you come back next time as a gal who
gets cramps. Have a good weekend all.
Date: Fri, 30 Aug 1996 23:18:21 From: Steve Subject: Vaseline? Oil?
Towels Tissue, Nan's daughter
Here's what I do to lubricate my skin. It works and creates a pleasant
feeling.
Shower. Do not towel off the water. Put a little vaseline on your hands
and massage them together. Put a little more Vaseline on your hands and
pat the area of wet skin you want to lubricate, then gently massage the
area. Dry yourself off with a towel.
Speaking of towels: I have found that 1/2 a towel is more than enough
and will cut your laundry considerably especially if you use a clean towel
for every shower. So don't buy any more bath towels. Those big things are
not necessary.
Oil drips all over the place for me. Vaseline stays in place.
But, if you developed a non-smelly oil recipe for the skin, let us know.
Doesn't vegetable oil on the skin get rancid?
AND........... I still think............that the skin must be cleaned
first, before adding a lubricant, or you are increasing the chances for
infection especially if you scratch.
Another Point. ..... A build up of oil or vaseline might cause fungus
to grow. It is evident when you get a tan, and white spots appear on your
skin. Allowing the skin to dry a bit (no oil for a while) may allow the
fungus to subside. Take vitamin b complex also. To prevent this oil build
up, apply the oil or vaseline AFTER you shower.
Showering with cool or cold water will minimize skin drying. especially
if you use no soap. no soap no soap. Unless necessary. If you walk sockless
or barefoot or have an activity that makes you dirty use some soap.
For scalp, a tar and/or aspirin solution helps. I can recommend two
if you like. I have posted it here before.
For ears, drying with a twisted 2 inch piece of tissue or paper towel
is helpul, as it cannot put pressure on the ear drum, can be left in the
canal for a minute to absorb the water and then removed easily, leaving
ears dry and UNprone to fungus infection. Before inserting, tear the end
off the insertion part. This will expose more paper fibers for faster absorption
of the water in the ears. I know. Put nothing in your ears... they say.
But if I don't do this I get problems.
Date: Sat, 31 Aug 1996 20:58:12 From: Wendy
I just wanted to mention that I once used Eucerin but I have begun using
Vanicream to moisturize, which is free of perfume, lanolin, dyes, formaldehyde
and parabens. It's really non-greasy and I just love it. It's very soothing
and soaks in much better than anything else. I'd definitely recommend it.
 
Copyright of the individual messages rests with those
who posted them. This Archive was edited and coded for on-line publication
on the Web by Byte Ryte bv. |