November 1996 Eczema Mailing List Archive
This file contains most of the traffic on the Eczema Mailing List during
November 1996. Please note that the Archive has been edited for accessibility
as well as the protection of contributors' privacy. The full flavour of
the Mailing List can be experienced only by subscribing.
Date: 1 Nov 1996 09:27:04 From: Peter Subject: Favorite non-lanolin
facial emollient?
I am looking for a good facial emollient/moisturizer that does not contain
lanolin. I would appreciate it if people in the group would give me suggestions.
Thanks.
Date: 1 Nov 1996 17:46:28 From: David Subject: Miscellaneous musings
>> I have severe atopic eczema and have had it since I was about six
months old.<<
Interesting; Can I ask if it got any better with age? My doctor seems
to believe it does - for example the other week I was fairly depressed
about my eczema and went to see my doc. He said that it should get better
with age; to which my response was - 'well yes - but you've been telling
me that for the last 20 years' (I'm 24!!) - his was 'yes but by the time
you are 60 it should have just about cleared up' It looks like you are
in the position of being able to substantiate that or deny it!
Having said that my doctor also believes lots of emollients help; they
don't seem to help me!
Date: 1 Nov 1996 19:37:27 From: Brenda Subject: Kelly&All
I'm not too sure about the spa. Coming from a country bubbling over
with natural springs, I have to say that sometimes they reek of, and are
in fact full of chemicals (sulphur comes to mind as the most prominent
one). Obviously eczema sufferers aren't going to come across mineral springs
every other day, but I think I would approach them with caution.
Date: 1 Nov 1996 22:59:23 From: Ann Subject: misc.
Alan, I think it was you who said you could freeze stuffed animals to
kill the dust mites in them. For how long do they need to be in the freezer?
Should this be done every week or so? I have been hot water washing them
(my boys have rhinitis, not eczema thank god!) but I worry that the animals
never get dry on the inside so I want to try the freeze method.
Date: 1 Nov 1996 23:53:11 From: Duncan Subject: Miscellaneous musings
My own thoughts and experiences on some of the issues that have appeared
in the last few weeks include:
-
Food allergies - basically disappeared by the time I hit my early twenties.
Some irritants I am aware of include alcohol (saves me from seeking solace
in drink), excesses of sugar and some dried foods and nuts. I suspect additives
in most cases.
-
Cataracts - both eyes operated on in last few years(and that's another
whole story in itself). I was told by both eye specialists and dermatologists
that the cataracts could be caused by either cortisone (which I have used
both locally and systemically) or by the eczema itself. In my case the
consensus seems to be that it was the eczema (there are differences in
the way it develops).
-
Wet wraps - the original article I read on this technique suggested that
it was effective because the skin of eczema sufferers is inefficient at
retaining moisture. My experience is that it is a very useful short-term
treatment when the itch drives you to ripping off chunks of skin but so
far I can't detect any significant long-term benefit.
-
Chinese Herbal Therapy - I've tried it once before without any obvious
benefit and I'm in the midst of trying it again. I think it appeals to
my belief system/logic but it is relatively expensive and foul tasting.
My experience is consistent with those who find that nothing works for
long and just as soon as you think you have found the answer the whole
bloody disease takes some new frustrating twist and you find yourself back
at square one.
Date: 2 Nov 1996 00:19:40 From: Laura Subject: Lifelong Eczema
I am a lifelong sufferer of eczema, but not full body. I have a hard
enough time dealing with it as it comes in a patch here and then becomes
a patch there. I have great empathy for the full body sufferers. I seriously
think that full body eczema would kill me. I would easily scratch myself
to death. Currently my eczema is just on my hands (although that will probably
change after my trip to my parents next week). I have had times when I
will literally scratch and rub my hands together for an hour straight.
When I'm through I'm tired and my muscles in my arms and back ache because
I have put so much energy into the scratching.
Before I joined this list, I felt like I was one of the few people in
the world that didn't grow out of their childhood eczema. I also thought
that I was the only person that couldn't get doctors to believe me about
the symptoms of my eczema and what I know causes the flare ups. I love
this list!
Date: 2 Nov 1996 10:44:52 From: Ann Subject: full body eczema
Laura, Don't live in fear of developing full body eczema. It comes on
gradually (at least it did for me) so you do learn to adapt. I do scratch
all over nightly but some areas stay calm and don't require instant medication.
I am extremely flexible from all the reaching and stretching to scratch
and I think my hands have gotten stronger as a result also. (I have always
very very weak hands as a result of never being able as a child to use
my hands because of the eczema.) So there are some twisted benefits from
this condition.
Date: 2 Nov 1996 10:48:29 From: Danny Subject: What level of strength
Kenalog Powder?
I was wondering if anyone knew what level of strength Kenalog Powder
is. My Derm said that it was a cortizone, much weaker than Lidex cream.
I know a while back that there was a list of steroids and their strengths.
I didn't see Kenalog Powder on it but I think that there is another (official)
name for it.
Date: 2 Nov 1996 14:41:34 From: Patsy Subject: Favorite non-lanolin
facial emollient?
Peter, I use creamy petroleum jelly as well as a store brand version
of Intensive Care. You might also want to look at creamy baby oil. Just
check labels.
Date: 2 Nov 1996 15:57:22 From: Kristine Subject: Shower tricks and
sinuses
I'm suffering in agony from sinus headaches due to allergies. The only
thing that has helped me get up in the morning to go to work is a real
hot shower that opens up my sinuses and get things moving away. Then you
guessed it, I'm itching pretty much for the rest of the day.
For the last few years, my allergies have taken a huge detour towards
developing sinus infections. I tried stopping them by using OTC sinus medicines,
until the internist told me that they make sinus infections worse. Just
using painkillers doesn't help unless if I take 5 ibuprofens a time and
we know that isn't too good of an idea.
In a sidenote about immune systems being busy elsewhere fighting other
infections, yes my eczema does seem to abate at bit when I have bad sinus
infections. But I really don't want to be fighting sinus infections all
the time.
Ummm, is there anything I can do besides the hot showers? I know this
isn't a direct eczema question but it's part of the atopic family right?
Help! I've had a killer headache going for 2 weeks and really cannot stand
to take antibiotics yet again because at this point the rebound eczema
comes on the scene after every round of antibiotics. My doctor was right
when he said that we need to become less dependent on medicine and work
on the holistic part of healing ourselves.
I happen to be lucky and have a doctor who's reluctant to prescribe
medicine for me. (I'm sick all the time with atopic problems!) He uses
his best judgment and waits until it looks as if it's going to be severely
infected. He knows food allergies play a large part with me and asks me
if I have been good lately. Like <g>, I'll be bad once in a while and
pig out big time (legume allergies). I usually concede that he's right
and I'm responsible and try to stay on track but it's a constant battle
when we have to eat to live and you happen to be allergic to almost everything.
And the punishment from the devil comes in the form of stiff, dry itching
skin everywhere. And I certainly can't take off my clothes at work to relieve
some of the itching!!!
Date: 2 Nov 1996 16:56:56 From: Ralph Subject: Shower tricks and sinuses
I find that several things help a sinus inflammation:
-
Drink lots of liquids. This thins the secretions, making drainage easier.
-
Drink hot liquids. See #1, plus it has some of the "shower effect" (extra
humidity inhaled)
-
Exercise in moderation. I can't do a lot when I have a headache, but a
walk seems to help.
-
Try to breathe through your nose as much as possible. I know this sounds
ridiculous, but if you can get any air through your nose at all, it seems
to help to keep breathing that way.
Finally, I don't agree with your doctor that all over-the-counter (in the
USA) remedies are bad for sinus infections. I've found that Sudafed, taken
in moderation and in along with lots of liquids, seems to help clear them
up.
Date: 2 Nov 1996 18:50:04 From: Steve Subject: Shower sinuses, salt,vitamin/mineral
Kristine, Sorry to hear of all your suffering. I too am allergic to
almost everything. It is really TOUGH dealing with this. Those times when
I am strict with my avoidance I am usually comfortable. There does not
seem to be any way around this. AND it is wise also to remember that no
ONE treatment is going to be THE miracle. This is all old news.
I would be interested in the diet you use that works for you. Mine is
natural turkey or New Zealand lamb, yams, or sweet potatoes, green beans
(several varieties), poi. Lately my cheating has been Oreo Cookies (low
fat). This "sinning" causes my whole body to swell but they taste so good.
I try to limit my buying of them to the small 8 cookie pack.
Your doctor sounds wise. Unless you have infections, stop all the medications
that touch the sinuses. No sprays etc. They do more harm then good.
VITAMINS/MINERALS HELP. Take one or two daily vitamins/mineral tablet
a day. Extra vitamin C is a big help. Take one gram three times a day.
Check the cources of the vitamins for anything that might bother you and
ask the pharmacist for some other brand. Artificial vitamins may be less
likely to cause allergies, (I think). Over a period of twenty years or
so I have gone on and off vitamins many times and have always always felt
better when I am on them. It takes a while to feel better, and you might
not even notice, then you feel better and you think..... "Gee, I feel ok...."
and you forget to take the vitamins.... then you get worse, and go back
on them..... It cycles like that and a pattern develops and you discover
that you are better when you take the vitamins/minerals. Or maybe you will
discover you feel better within two weeks or so.
Give it a try. I use Centrum. Get it at a discount house in a huge bottle
and you'll save a lot of money. There are cheaper brands that say they
are the same but I am reluctant to switch from a product that works for
me.
Gently rinse your nose with *mild* warm salt water, just a few shakes.
Rinse with plain water. Rinse, blow your nose, rinse, blow, rinse blow.
ALL done gently. Do it in the shower.
Date: 2 Nov 1996 19:15:24 From: Steve Subject: Whelan/Non-lanolin facial
emollient?
Peter, If your face is not broken out, or infected think about the following....
Scrub your hands and nails. Gently wash your face.
Put a little Vaseline on your hands and rub them together. Pat your
face with hands, until you have the right amount of V on. Gently massage
your face. It feels good too. Wipe your hands on a clean towel and massage
your face a little more. Don't worry about the "excess" Vaseline, it will
absorb in an hour or less.
I use the Vaseline on my hair/scalp too. If I don't my scalp gets itchy.
But I have to shampoo every night.
Vaseline, as far as I know, has only one ingredient. Other lotions etc.,
have ingredients that number five, ten, and more. The more ingredients,
the more chance of problems.
I would not use Vaseline or anything else in excess. Skipping days between
uses might be advisable. Too much moisturzing over many days will encourage
growth of fungi - the white patches that are seen on tanned persons during
the summer. I am not sure how many days it takes for this to happen.
Date: 2 Nov 1996 22:16:25 From: John Subject: Lifelong Eczema
I have had eczema from 6 months, fullbody, the rash is not too bad but
I have a lot of red inflammation, I have metosyn ointment for the body,
cortisone for the face and phenagan pills- I think they are anti-inflammatory
pills.
I was wondering if there is any alternative medicine worth investigating
eg herbs/Chinese. I know in the UK there is a Chinese remedy but this is
supposed to cause possible liver problems, so is only recommended for the
very severe. I have also Crohn's, also but not much ashma/hayfever now.
Guess I have had the lot of associations.
Date: 3 Nov 1996 12:55:37 From: Brenda Subject: Shower tricks and sinuses
>>I tried stopping them by using OTC sinus medicines, until the internist
told me that they make sinus infections worse. <<
Sure do. 5 days is the maximum for them.
I have the same problem, though not as severe as yours. My GP presribes
the nasal spray Rhinalar which is a solution containing 0.025% flunisolide.
You can use it long term. It doesn't cure the condition but it's certainly
removed the misery of waking up every day with a sinus headache. Alternatively,
if you find that the hot shower relieves it, why don't you just try inhaling
steam over a bowl instead?
Date: 2 Nov 1996 19:27:22 From: Steve Subject: Kristine/sinuses and
steroids
Brenda, Is the flunisolide a steroid? I suspect it is. Watch out...
read the warnings that come with the prescription. Heed them. AND I do
not think a GP is the doctor to see when it comes to using steroids. When
steroids first came out a GP almost killed me with steroids. That was long
ago but... Be careful.
Date: 3 Nov 1996 14:43:04 From: Robert Subject: Miscellaneous musings
I have also had eczema on and off for 50 + years. Pretty much the same
experience. I have had long periods of remissions (years) and visa versa.
If you would have asked me at age 30, I would have said that it is probably
gone for good, but that did not turn out to be the case. Hopefully, something
will come out of immune system related research and you will not have an
unmanageable problem in the future.
Date: 3 Nov 1996 15:18:19 From: Alan Subject: Soft toys
Ann: 12 hours in the freezer seems to guarantee the death of dust mites
but having killed them, you will still need to remove their droppings which
are what causes the allergic reaction - so a wash after freezing is still
required. As to frequency, once a week should be fine on the understanding
that we can never eradicate the little pests from our homes entirely, regardless
of how thorough our cleaning regime may be.
Date: 3 Nov 1996 15:21:43 From: Ann Subject: sinus treatments
Kristine, I, too, have sinus trouble when my eczema is better. I prefer
treating the skin because I can SEE how it's doing and therefore am not
so apt to overmedicate or let it get out of control.
Washing the sinuses out with warm salt water can be really helpful.
Be sure to use a squeeze-ball syringe; just snuffing the water in doesn't
get it high enough. (It took me years to discover this truth of atopic
life.)
I also always keep some form of nasal steroid on hand and I can often
head off an infection with a few sprays. Allergy shots have helped my eczema
and have just about eliminated my chronic sinusitis. But they only are
relevant if you have: major dust and pollen allergies, a brilliant allergist,
time, health insurance or a fortune, patience, and the guts to let your
skin get worse before it gets better.
Date: 3 Nov 1996 21:07:49 From: David Subject: Soft toys, salt and
a bag.
Freezing dust mites seems to be the definitive way to kill the little
critters, but for a quick fix one might want to try placing the (dry) soft
toy in a bag filled with approximately 1/2 to 1 cup (depending on size
of fuzzy toy) of plain table salt and shake. 30 seconds of shaking should
do the trick. The salt probably wont kill the dust mites but it is an effective
way to knock off dust and mite droppings.
Date: 4 Nov 1996 01:17:25 From: Duncan Subject: reply to David
I can't say that there has been any progressive improvement over the
years, the pattern is much too erratic. I can say that I used oral cortisone
for some 20 years and haven't for the last 10 years but I'm not sure if
that is a change in my eczema or just a change in management.
Having said that, it is my understanding - if not my experience - that
eczema often improves with age.
Date: 4 Nov 1996 12:19:55 From: Brigit Subject: Graeme-EPO etc.
Graeme, On 22 Oct you wrote:
>> My little girl is 4 and we are using exactly the same treatment with
EPO [applying directly- Brigit], except the capsules also have starflower
oil, another known herbal remedy for eczema (the other being chickweed).
It was recommended by other parents whose kids have also had eczema. I
was astonished to learn that lanolin can be an allergic trigger - most
of the creams we have been slapping on her skin in desperation to see if
they would work contain lanolin. We have now decided to stop all creams
and only use EPO - we'll keep you posted on progress. <<
My question: Is starflower oil (hadn't heard of that one yet!) another
one of those oils with GLAs in them? Or does it have a different active
ingredient?
The reason I'm asking is that I am trying to collect information on
all those GLA-containing oils (flax seed oil, EPO, borage seed oil are
the ones that I've heard of), to see if there is any difference between
them other than the quantity of GLAs they contain. Also I'm trying to find
out why this GLA (Gamma Linolenic Acid) stuff is so good, i.e., how it
works.
I purchased and used some cream based on borage seed oil. It's not bad,
but pure EPO is a lot cheaper. My local chemist informs me that borage
oil simply contains more GLAs than EPO; if that is the only difference,
then it makes sense to switch to borage seed oil and perhaps make my own
version of the stuff.
Date: 4 Nov 1996 13:00:25 From: Shelley Subject: Steve/Scratching/Tactile
Sensations
After nearly 40 years of fullbody eczema, I have learned that I have
a high need for tactile stimulation at all times. That is, my brain is
accustomed to a high level of sensory input from my fingertips. Perhaps
this was caused in infancy with so much scratching creating a "norm" that
was abnormal, anyway, the point is that I need to give my body alternate
tactile sensations instead of scratching. If my fingers aren't touching
something all the time, I will automatically reach for my skin.
So instead, I hold a pen or a tissue/handkerchief, rub my fingers along
a tabletop, hold a coffee cup, shuffle papers, etc. whatever is within
reach of my hands that can occupy them. I also put my fingertips together,
pull my hair, squeeze my earlobe, anything that isn't scratching is OK.
My most satisfying tactile experience is giving someone a massage, I guess
because I'm touching them in a way that's hard for me to be touched. Sometimes
tears come to my eyes as I realize how "normal" their skin feels and how
my skin has never felt like that.
I think that part of the reason this online group is so successful is
that we are using our hands to type on the keyboard, thereby giving our
hands tactile stimulation and cutting down on our need to scratch.
Obviously, when our skin is flaring up, we are going to be itchy. I
am talking about those of us who are addicted to scratching whether our
skin is flaring or not. And this info can be used by parents who can help
their kids from getting scratch-dependent by encouraging them to hold handkerchiefs
or other soft things in their hands. Even holding their hands lightly,
perhaps by one finger, to give them a slight tactile sensation. (Too much
sensation can trigger an urge to scratch.)
It's a tricky thing. Everybody has to experiment with what works for
them.
Date: 4 Nov 1996 14:17:14 From: Kelly Subject: Quercetin
Quercetin is not absorbed well by the body. For better absorption, it
should be taken with Bromelain, an anti-inflammatory enzyme, between meals,
3x's a day. Q should be taken in a dose of 250 - 500 mg. and B in 400 -
500 mg. You can find preparations already on the market in proper proportions
such as Doctor's Best and Enzymatic Therapy or you can experiment yourself
to find the best proportions for yourself. Bromelain contains sulfur so
beware if you are sensitive to it.
Date: 4 Nov 1996 14:23:05 From: Richard Subject: meditation
Shelley's comments about being addicted to scratching even when it doesn't
itch (I am and do) made me think of this... I have an extremely hard time
relaxing, sitting still, meditating, etc. It drives me crazy. After having
meditated for a bit, I find myself extremely itchy. The same after bodywork.
It's like my body does not like to be without the constant nervous energy
that comes from bombardment of itch sensations. My guess would be that
this is a pretty common experience for us. I have wondered about it for
a while though. Any thoughts?
Date: 4 Nov 1996 15:24:08 From: Kelly Subject: Non-lanolin facial emollient?
I've done the Vaseline thing but I had to use Dawn dishsoap to get it
out with a couple of washings. Why not try an oil, Olive works great and
washes out easily. I put it in an used scalp medication bottle to apply.
Quick and easy. Plus there are several other oils a person could try.
Date: 4 Nov 1996 15:40:31 From: Satya Subject: Several items
My experience with CHT initially was very good. I was taking the teas
as prescribed and also applying the creams they had given me. Then after
6 months, I had a mysterious bout with diarrhoea. After many tests and
visits to specialists, no body could figure out why. At that point, I stopped
taking the tea. Coincidentally, the diarrhoea stopped. I am not sure if
there is any connection. Then I read on the Net, some other people also
had similar symptoms. Again I am not attributing all this to CHT, but just
telling you my experience. Since then, I have not taken any oral CHT, but
I am using Chinese topical creams. They do contain steroids. But I have
no options.
Also I have been trying caledula in various forms, creams, ointments,
gels, oral. This has given me some relief. I am willing to try anything
topical but not oral.
Date: 4 Nov 1996 18:41:49 From: Kelly Subject: Graeme-EPO etc.
Gamma-Linolenic Acid is an omega-6 fatty acid. It works on the theory
that we are deficient in this and because we are deficient, we are unable
to produce enough anti-inflammatory prostaglandins. Give us the GLA and
we can produce prostaglandins.
Quantity is not the only difference but it all still comes down to getting
more GLA in your system or the right acids in you to be able to be converted
to GLA then to prostaglandins. I think EPO's a joke, you have to use so
much more of it to get the same effect as borage (= starflower) or black
currant oils. EPO's GLA count is averages around 7% and borage's averages
around 22%, 3x's + higher.
Date: 4 Nov 1996 19:02:52 From: Christine Subject: Scratching.
I find that scratching makes me itch more. When I feel so itchy, I just
take a damp sheet or pillow case and put it on the itch. Most recently,
after having been on prednisone for a year, my blood vessels were weakening.
Then, when I scratched, I just bruised myself so badly. I looked like somebody
beat me up all over. It was kind of scarey.
That problem continued for a few months; but, now that I'm off of prednisone,
I'm back to normal. I had fake fingernails done professionally for a while.
I noticed that because the fake fingernails were thicker than mine, scratching
didn't damage the top layer of my skin. (Scratching with my regular nails
just made me bleed.)
Date: 4 Nov 1996 19:19:13 From: Kristine Subject: Doxepin/Scalp itching/Sinuses/science
talk
When Atarax (hydroxine) started failing to get me to sleep at night
with a minimum of itching, my doctor switched me to Doxepin and I stayed
on it for a couple of months until my job started requiring me to come
in at 6 am. Doxepin scared me so bad how drugged I would be driving to
work. I normally have a lot of self control over my consciousness (perhaps
caused by being super alert to itching sensations?) and even when tired
can stay awake with a minimum amount of effort.
This drug had me driving in a stupor where I could not fight hard enough
to keep my eyes open. For the mornings that I took it and had this problem,
I had to pull over and sleep it off for as long as needed (probably sounded
like a strange story to my boss but then again she knows my health problems).
Is this one of your big side effects and anyone else's? I did not notice
myself being any more cheerful or happy on it either. I must not be too
depressed to begin with then, because it's a drug often used for depression.
I have resorted to no drugs for the time being for reasons I mentioned
in previous postings and also because working 12 hour days and commuting
an additional 2 hours will make you tired enough to fall asleep easier.
Plays havoc with my health though. Any other drugs besides Atarax or Doxepin
if I ever need to go back to them????
As far as the scalp itching, right now I have sores on my scalp that
are painful to expose to shower spray and shampoos. I have just been putting
Elocon on them and they clear up after about 2 days. I am not sure what
causes those as it doesn't seem relate to my other sore spots. My face
can be fine and I'll have my scalp break out. I'm chalking these up to
stress from work once again.
I want to thank everyone for the helpful suggestions regarding my sinuses.
I feel somewhat better but still out of it slightly. Typing does take my
mind off my physical ailments. Thanks for patter. Here's what I did - hot
apple ciders & broke down and ended using nasal spray Vancenase. Like
Ann said, a few days of that and you feel like you are almost a normal
person (my spin). Still trying to learn to avoid my craving for hot showers.
Date: 4 Nov 1996 19:38:02 From: Chuck Subject: my son
My son began his life of torment with a spot of eczema on his right
shoulder at age one, a short time after he lost interest in the breast.
Now he goes through exacerbations in full body eczema (his hands get the
worst) with no cyclic rhyme or reason. He was scratch tested last week
for food and airborne allergies, and the allergist, aside from identifying
a Staph infection, was amazed that he was allergic only to grasses. He
tested him twice for dust mites.
What concerns me is that although he eats well, he's in the third percentile
in weight and 25th percentile in height for a seven year old... a real
peanut. Smart as a whip though. He's in grade two and reads at a grade
six level.
I've read about EFAs (essential fatty acids) and am pondering two ideas
that I would like to bounce off everyone.
-
Could the eczema be a symptom of an absorption problem at a cellular level
in his gut lining (i.e. integrity of cell membranes and their subsequent
inability to perform transmembrane transfer of nutrients)?
-
Are there herbal remedies which stimulate the immune system or accelerate
prostaglandin and thromboxane synthesis (in essence imitating an immune
response or heightened immune "readiness") since it's true from a subjective
point of view that he indeed clears up when he's feverish?
Date: 4 Nov 1996 20:17:32 From: Brenda Subject: Miscellaneous musings
I recently heard a murmuring from another source that it could be something
to do with the immunity set up in a new-born through the mother's milk.
A bit late for all of us, but it would be interesting to know what the
ratio of breast-fed/bottle-fed babies is on our list.
Date: 5 Nov 1996 00:28:36 From: Edward Subject: hand (palm) eczema
- what makes it worse?
My question to those with hand eczema is: "What makes your hands worse?"
It's an important question - as I slowly identify things that make me worse,
this permits me to develop work-arounds or modify what I do, and I am improving.
I am an eye surgeon, and I believe my problems come from my history
of atopy (seasonal allergic rhinitis since childhood) as well as my occupation
(more about that later). I also believe that I have a dual problem - contact
dermatitis to rubber (from years of wearing natural rubber latex surgical
gloves) as well as irritant hand dermatitis due to my occupation. These
two problems seem inter-related. My skin eruptions are vesicular - in other
words, I develop hundreds of small, tense, fluid filled blisters on the
palmar side of my hands and both on and between my fingers.
Unless treated aggressively with topical steroids (I too use Clobetasol),
the blisters last for weeks before finally "drying out". Or sometimes,
when the blistering is particularly bad, the vesicles will coalesce into
larger blisters called bulla, and my skin will crack, fissure, and bleed.
I do not have foot eczema. As I improve, the number of vesicles, and the
area of involvement, is decreasing.
So, what makes me worse? Here are the things I have so far figured out
(mainly from my own observations, and some from books).
-
Allergic contact (Rubber allergy) - this is the biggest factor for me.
Allergy to natural rubber latex is common among health care workers (10%
or greater). I have improved substantially since I stopped using natural
rubber latex surgical gloves, and improved further with careful avoidance
of skin contact with any and all rubber products (both at work and at home).
I mention this to make the point that hand dermatitis is sometimes an occupational
illness - think about what you come in contact with at work, or your hobbies.
Even with stringent rubber avoidance, however, my skin problems persist,
though milder than before.
-
Skin irritants and handwashing - As I eliminate the rubber monster, this
is becoming a bigger deal. As a doctor, I wash my hands frequently. In
my office, I am trying to work around this by switching soaps. Currently,
I am using mainly liquid Cetaphil and (occasionally) Dove at work, and
Dove at home. In the operating room, this is a major, major problem - the
surgical scrub soaps that are used are very harsh.
-
Friction and pressure on the skin - another very big problem. This relates
to the handwashing issue also. I have learned that I must not rub my skin
vigorously to dry it after washing - it seems important to thoroughly but
gently pat the skin dry, preferably with a cotton towel or a paper towel.
I prefer a liquid soap over bar soap because the liquid soaps don't require
any friction to soap up my hands. I try to be careful not to rub too vigorously
when scrubbing for surgery or bathing. Outside of work, it seems that I
must avoid activities that put significant pressure against my hands. For
example, I have exercised at a health club for many years. I find that
I can no longer use the weight equipment. Even if I wear a heavily padded
glove, the pressure on the skin from pushing weights seems to aggravate
the skin condition. Also, I am finding that I prefer to wear a 100% cotton
gardening glove when I drive. When my skin was really bad, it simply hurt
too much to grip the steering wheel without gloves on. Now that my skin
is improved, I find that the mild pressure of holding the steering wheel
still leaves my hands very red unless I cushion them with a cotton glove.
(A cotton glove is also nice because otherwise the steering wheel would
get very slippery from all the Eucerin I use.)
-
Rings - the dermatitis began (several years ago) at the base of my ring
finger on my right (dominant) hand. I gave up wearing rings some years
ago.
-
Cold weather - we do get some cool and very dry weather in the winter.
I find that if my hands are exposed to the cool air for even a short period,
my skin becomes quite red. Several years ago, before the skin condition
became chronic and constant, it would tend to flare up in the winter months.
I now try to wear gloves (preferably cotton, unless it is so cold that
I need something warmer) when out of doors in cool weather.
I am very interested to know what others with hand eczema have figured
out. What kinds of things can you not do? What types of contact need to
be avoided? What are your work-arounds for the problems you have identified?
What brands of soap seem to work best?
Date: 5 Nov 1996 01:52:23 From: Julia Subject: Miscellaneous musings
Our daughter Esme (aged 9 next Saturday) was completely breast fed till
about 6 months old. After that she was partially breast fed till she was
just over a year. She has suffered continously from full body eczema since
she was about 8 months old, though not so badly as she used to due to the
miracle (for us) of wet wraps. Breast feeding didn't protect her from eczema,
though personally I think it is best to breast feed for lots of reasons.
When she was about 3 weeks old she had what I think is called "milk
rash" which was quite bad. I don't know if there's any connection.
Incidientally, the Seton Healthcare Group produce a booklet about wet
wraps which can be sent off for. They also send a little book aimed at
children who use wet wraps. The address is Tubiton House, Oldham, OL1 3HS,
England. I guess they would send it anywhere in the world if you send them
enough stamps.
Date: 5 Nov 1996 05:12:25 From: Patsy Subject: Hand Eczema
Hands are where my eczema first appeared, and there is a disagreement
between my MD and me as to the cause. I had had both a major death in my
family, and my dishwasher was broken so I was wearing rubber (cotton lined
latex) gloves to wash dishes by hand. I don't suppose we'll ever know the
real cause.
I treated it with cortisone ointment and white cotton socks at night
(didn't have cotton gloves and was convinced I resembled a cartoon character!).
While that seemed to help some, I can't tell it relieved me of all symptoms.
In frustration, I gave up on any treatment but OTC stuff. I am, at the
moment, fairly symptom free on my hands - just a few patches between fingers.
This afternoon, I could very well be covered in it again as everyone well
knows.
For the MD - would rubbing your hands with something like betadine then
rinsing before surgery be acceptable? Creamy petroleum jelly is a wonderful
moisturizer without being as greasy as the regular kind.
Good luck. Perhaps the day will arrive when people will be willing to
shake hands with us again without cringing.
Date: 5 Nov 1996 06:17:11 From: Patsy Subject: Doxepin/Scalp itching/Sinuses/science
talk
Kristine- Ask your doc about Vistaril. It worked for me for a year before
I built up an immunity.
Date: 5 Nov 1996 06:29:05 From: Christine Subject: Hand Eczema
The eczema on my hands is characterized by totally dried out skin with
cracks that don't want to heal, along with itch; and, sometimes I get that
little bubbly-like blistery rash. Touching tomatoes, oranges, eggplant,
kiwi, and vinegar gives me a maddening itch. Avoiding lanolin helped me
terrifically (all over). Frequent hand washing painfully dries up my hands;
I bet it's the chlorinated tap water.
For relief I use globs of vaseline petroleum jelly; then, I put on soft,
thin, white 100% cotton gloves. This seems to conquer the dryness and noticeably
promotes healing of the cracks. I sleep with the gloves on, and I try to
wear them whenever possible (during painful times).
Cortisone ointments don't help me as much as the vaseline in gloves.
When my hands are too inflamed and itchy, I take a damp pillow case and
stick my hands in them until they feel better (usually about 30 minutes
to an hour, while I relax in the evening). Then, I follow up with vaseline
in gloves.
Date: 5 Nov 1996 10:19:01 From: Ali Subject: hand (palm) eczema - what
makes it worse?
I'm also a "lifer" - atopic dermatitis, which generally isn't too bad
(aggravated by wearing wool and eating chocolate). I also have hand eczema
-- my biggest problem at the moment.
The thing that aggravates is greatly is washing dishes -- the soap.
Rubber (lined) gloves help, but are kind of awkward. One cream that's helped
a lot is Avon's "Silicone Glove". It does a good job of moisturizing and
seems to keep the hands from being overly affected by soap, as long as
I apply it throughtout the day.
Another cream I've had some luck with is Neutrogena's Norwegian formula.
It is kind of gloppy, but I reserve it for overnight use.
Also, I know that while I too am allergic to latex rubber, sometimes
the powder on the surgical gloves is an additional irritant, so you may
want to check out getting them unpowdered. I know that the surgical scrubs
are very harsh; maybe you could slather on one of these creams after surgery
to counteract the effects. Good luck!
Date: 5 Nov 1996 10:54:50 From: Brigit Subject: sauna, again
I totally agree that you want to be careful with any type of public
bath (although sulphur, I've heard, is good for the skin -- smelly, though...).
In my experience, saunas are great for swollen and/or oozing manifestations
of eczema; it almost seems to "sweat out" the fluids that are *underneath*
the skin (even if I don't sweat much, not even in a sauna). Also, Christine
told us that *evaporation* helps calming down the inflammation, and there's
certainly a lot of evaporation (of water) going on if your body temperature
is temporarily high and you then have a cold bath and walk out into a windy
14 degrees Centigrade for a while. So there are two good effects bundled
into one activity.
Date: 5 Nov 1996 13:34:25 From: Steve Subject: Kristine/10steps2cmfrtble
Sleep
Re: your sinuses. Taking steroids is the easy way out. But potentially
harmful. Try to get off them. It is difficult. I have the same difficulty.
Kristine, My doctor told me and I found it was true for me that Doxepin's
side-effect of drowsiness wears off after about two weeks. I guess that
does not happen to you. It also makes a BIG differenece as to WHEN you
take any drug. I found it best to take the Doxepin around 4 pm. If I have
to take any steroid pill it works best for me if I take it around 1 AM
with food. Yes, I can get back to sleep. Taking the pill at 1 AM reduces
the "no-sleep" side effect I get if I take it in the morning.
Kristine.. to help you sleep:
-
Try taking calcium/magnesium at around 4 PM, instead of milk which also
contains cal/mag. Cal/mag is a natural tranquilizer. Take it no sooner
than one hour before a meal, as the cal/mag will neutralize the digesting
acids for a short time. Try to find a brand of cal/mag that has no ingredients
that will bother you. Different brands have different sources. Have a talk
with the pharmacist.
-
To allow best absorption of the cal/mag, vitamin D is necessary. If you
don't get a little sun regularly, (which might be good for your scalp sore)
then take a multivitamin including D. Again check the ingredients. I take
Centrum.
-
One half hour before sleeping, shower with cool water,
-
One half hour before sleeping. After your shower, take 1 gram of vitamin
C to reduce itching.
-
One half hour before sleeping do some full body stretching yoga style gently
to relax your body. Hold stretch positions for 20 seconds at least. Be
gentle. If it hurts, ease off. (This stretching enhances relaxation about
10 minutes before meditation. Meditation is another story.)
-
Make love before sleeping.
-
Avoid allergens that are causing the itching. Investigate thoroughly all
that you eat and drink, and all the environments which affect you. Make
changes. Make changes. Make changess.
-
If the itching persists, use ice to stop it.
-
Stress from work will fade when you exercise. Walk or jog or swim or ride
an indoor bike or do something to get you puffing. A good exercise program
will make you: puff, groan, and ahhhh, in moderation.
-
If the itching persists, get a new set of doctors.
Date: 5 Nov 1996 14:25:39 From: Kelly Subject: Hand Eczema
Betadine is contradictory to anyone who has eczema, we should never
let betadine touch our skin, same goes for neosporin.
Date: 5 Nov 1996 15:19:57 From: Kelly Subject: Doxepin/Scalp itching/Sinuses/science
talk
At [4 Nov 1996 19:19:13 PST] Kristine wrote:
>> I have sores on my scalp that are painful to expose to shower spray
and shampoos.<<
It's just another form of eczema that is more bacteria based, you must
keep the sores very clean. Try applying bactriban with a Q-tip.
>> Still trying to learn to avoid my craving for hot showers. <<
I wasn't going to speak up about hot anything (showers or baths) but
here's another view. In Ayurveda medicine, they believe eczema is a condition
in which the body has problems in eliminating toxins through the skin,
therefore getting trapped in the skin, like a road block, with no where
to go causing an outbreak. One of their treatments is the heating up of
the body, making it perspire to flush out the blockage, getting rid of
the toxins. They state that the first 20 minutes you will start to itch
like hell from mobilizing the toxins and you will. Stay heated as long
as you want but not real neccessary to exceed an hour, I only survive 30
to 40 minutes. When I get an acute flare up, I will do this and I hate
it, I do it in the bathtub and severely itch for about the first 20 minutes
said then it stops. I keep adding hot water throughout until I ready to
get out then I start bringing the temperature down slowly because sudden
temperature changes in eczema, makes it angry! This can stop a flare up
in its tracks!
Date: 5 Nov 1996 16:23:20 From: David Subject: Starflower oil
Starflower oil is another name for borage oil. Perhaps the manufacturers
prefer it because it is a prettier name ;-)
Date: 5 Nov 1996 17:27:44 From: Patsy Subject: Hand Eczema
Unless I'm mistaken, betadine is an aneseptic used on patients. I'm
also using it in a diluted form for gum problems - as per dentist's instructions.
Date: 5 Nov 1996 20:10:13 From: Cheri Subject: Miscellaneous musings
Hi - count me for one bottle fed. I don't think my mother ever even
said the word "Breast", much less admitting that she had one (or two)!
:)
Date: 5 Nov 1996 21:27:58 From: Cheri Subject: hand (palm) eczema -
what makes it worse?
I think my eczema got so bad here because the house we bought had a
large lot covered with boring grass, and I got the landscape/gardening
bug BIG TIME. My most favorite weeding sensation is pulling the roots of
bermuda grass by hand with no gloves, going really deep, until I notice
that I'm blistered and bleeding. Obviously, I had to conquer that addiction!
My eczema is classified as fingertip eczema, since it never goes beyong
the 2nd joint of my fingers. No blisters, just dryness, then cracks, then
fissures, then blood and OUCH, then scab, in cycles.
What makes it worse? Dust, dirt, house-cleaning, house-cleaners, sewing,
jigsaw puzzles, Santa Ana winds, heat, dryness, baths, washing hands, having
dirty hands, paper, esp. with ink like newspaper or paperbacks, anything
powdery like pet food, litter, fabric softener sheets, all remodeling activites,
gardening, swimming/spa, friction (like on an exercise bike), working with
dough, - most all contact. I bet you can guess just from my list above
what my hobbies and job duties are. (were) Allergy? I'm allergic to wool,
amoxicillan, and prolonged contact with latex or adhesives, not sure about
lanolin.
What makes it better? Goo! Right now my fingers are better than they've
been in 3 years from applying cortisporin twice a day on a staph infection,
but I don't use that stuff routinely because it never heals anything, therefore
isn't worth it to me. Goo inside cotton liners inside latex gloves is the
best for me....simple as possible. I use vaseline mostly. I sleep in cotton
gloves most nights, alternating with latex over cotton and occasional special
nights with actual naked hand skin.
Nutriderm is okay, but too thin and wet. I just discovered some really
COOL stuff - NIVEA skin conditioning OIL! It's so thick and rich and gooey,
my skin just goes into ecstasies over it. I use it full body twice a week
after a bath in tons of oils, and for a while, I don't look powdery. My
cures only work on scrupulously clean skin. In the bath, that Oil of Olay
liquid soap for extremely sensitive skin is good. I use a nail brush on
my hands. At work I slather my hands with Eucerin Cream for "severely dry
skin" or whatever, then add the gloves for an hour or more at a time.
So there you have it, contact causes it, and more contact repairs it.
One thing though, once it starts, the outbreak cycle needs to go all the
way - there doesn't seem to be a way to speed it up or skip any part. Haven't
you noticed, when it gets really well, it takes longer to come back. And
when it starts to get bad again, I think it must have been programmed a
while ago, because I can't stop it.
Date: 5 Nov 1996 22:23:27 From: Ann Subject: breast vs. bottle
I, too, was completely bottle-fed. I would bet that the vast majority
of us were bottle fed, not because we all developed eczema, but simply
because we seem to fall mainly in the 25-55 year age range and were born
at a time when breast feeding (in the US at least) wasn't in vogue.
This is an interesting topic though. I had my twins when breast feeding
WAS the thing to do. I'm proud to say that both boys thrived for 5 months
on just my milk. This was extremely impressive since I don't appear to
have any equipment for this activity if you know what I mean! Anyhow, I
sometimes wondered if bottle feeding might in some cases be BETTER for
allergy prone babies since you have more control over the ingredients.
Everything the mother eats gets into her milk; so it seems like the baby
is getting bombarded with more potential allergens than he would with a
simple bottle formula.
Date: 6 Nov 1996 00:06:40 From: Andrew Subject: New subscriber's list
Although I abstain completely from the foods in the following list I
keep an 'Enjoy in Moderation' philosophy for all other foods by not eating
(or drinking) the same type of food on successive days.
-
Apples, oranges, apple juice and orange juice.
-
Any brand of cola or lemonade.
-
Meat pastes (the kind you put on sandwiches).
-
Vegemite (like Marmite in the UK, dont know if other countries have anything
similar)
-
Custard, ice cream and biscuits I consider under suspicion so definitely
keep them down to once a week (if at all).
Any food I see mentioned more than a couple of times as causing an outbreak
for other people I add to my mental avoid list and try to lower my intake,
foods such as tomatoes, carrots, milk and eggs
Things I dont like near my skin:
-
Wool. In clothing, of course, and sometimes evil hotel owners use wool
blankets and even wool mattress protectors to try and catch us sufferers
out !.
-
Dog and cat fur. Blocks my nose up too.
-
Nylon and polyester. Im not sure they are bad in themselves but I get hot
when I wear them and start itching (which is a definitely bad).
-
Baby oil.
Basiclly I just wear cotton clothes.
Some things such as hot showers, chlorine pools , a hard game of squash
dont seem to cause it by themselves but will annoy it when it is bad. I
try to differentiate between genuine causes and just aggravators to save
myself from being scared of doing and eating everything.
10 years ago I had some acupuncture to try and help. It didnt do anything
for my skin but it cleared my sinuses up immediately. Since then, whenever
my sinuses go bad, I just concentrate hard on how it felt having the needles
in (one on each side of my nose) and most of the time my nose will clear.
Weird but true.
Also I avoid getting too tired and getting stressed as they both lead
to general itchiness.
Now that I have written my list down it doesn't appear as long as I
expected it would but still hope it might help somebody.
P.S. My wife wants to know if there is a support group for people who
have to live with eczema sufferers :-)
Date: 6 Nov 1996 14:39:17 From: Kelly Subject: New subscriber's list
>> I keep an 'Enjoy in Moderation' philosophy for all other foods by
not eating (or drinking) the same type of food on successive days. <<
Now I'm impressed that somebody can do this. People with allergies shouldn't
eat any food or any food from the same food family in any 4 day given period.
>> Any food I see mentioned more than a couple of times as causing an
outbreak for other people I add to my mental avoid list and try to lower
my intake. <<
Don't, because anybody can be allergic to anything that has protein
and you may not be allergic to that specific item.
>>Sometimes evil hotel owners use wool blankets and even wool mattress
protectors to try and catch us sufferers out! <<
I take my own sheets and towels to hotels.
>> Baby oil.<<
They have fragrances or you may be allergic to the mineral oil itself,
I am, the slightest contact makes me a prednisone and cipro addict.
>> whenever my sinuses go bad, I just concentrate hard on how it felt
having the needles in (one on each side of my nose) and most of the time
my nose will clear. Weird but true.<<
Not weird at all, our mind can control our physical being.
Date: 6 Nov 1996 01:42:59 From: Edward Subject: hand eczema (continued)
I'd like to respond to several posts that had comments about hand eczema.
I appreciate the comments.
First comment: "For the MD - would rubbing your hands with something
like betadine then rinsing before surgery be acceptable?"
I have tried betadine - I find that it seems to dry my skin badly (by
removing natural skin oils?). I don't have a good soap solution for surgery
at present. I have tried calling several manufacturers of what I consider
the better soaps to convince them that there is a market for a gentle soap
that could be used in surgery. This week I am bothering Galderma (the makers
of Cetaphil), and I have asked if they can add triclosan (another surgical
disinfectant) to Cetaphil, but I haven't gotten a response yet.
Another comment: "I also have hand eczema-my biggest problem at the
moment. The thing that aggravates is greatly is washing dishes-the soap.
Rubber (lined) gloves help, but are kind of awkward. One cream that's helped
a lot is Avon's "Silicone Glove"....I know that while I too am allergic
to latex rubber, sometimes the powder on the surgical gloves is an additional
irritant, so you may want to check out getting them unpowdered....I know
that the surgical scrubs are very harsh; maybe you could slather on one
of these creams after surgery to counteract the effects."
I am unfamiliar with Avon's product - what kind of product is this?
There are a number of barrier or skin shield products on the market (I
know of at least three), and I am using one of them. I wasn't going to
mention this yet, because frankly l am not certain if it is helping or
how much (but I do think it helps me). But since you bring this up, I'll
continue. I am using a product called "Hand-Sense" or "Skin-Sense." It
was developed by an Israeli pharmaceutical firm, and is marketed in the
United States by a company called North American Safety Products. The product
is aimed at people in health care, and it was recommended to me by two
very reputable people at different medical glove companies. Hand-Sense
is applied BEFORE (not after) you perform the task that gives you trouble.
It is not oily - after it dries, it is claimed that it lasts 1 to 4 hours
on the skin as a barrier against harsh contact. It supposedly persists
on the skin even if you wash your hands. It is expensive, but if anyone
is interested there is an 800 number to call for information: 800-589-6536.
I apply it before performing surgery.
I also keep a tub of Eucerin cream in my locker so that I can apply
Eucerin when I complete surgery. (Eucerin is not acceptable in the operating
room - it is oil-based, so it slowly dissolves rubber surgical gloves.
Hand-Sense, however, can be used before gloving - it doesn't dissolve rubber.)
About washing the dishes: if you're allergic to latex, why are you using
a rubber glove (even if it is lined with cotton)? Magla makes a kitchen
glove for doing the dishes that is advertised as safe for those who are
type 1 allergic to latex, and it has a soft liner built in. I can get you
some details if you are interested.
Another comment: "Help me out here: do I remember correctly when I say
rubber gloves are bad news and latex gloves are alright? Isn't there a
difference between natural rubber latex surgical gloves and latex gloves?"
Ah, here is something I know quite a lot about. The majority of medical
gloves are manufactured either from rubber (natural or synthetic) or vinyl.
Most would agree that vinyl just doesn't provide the same level of barrier
protection against disease transmission as rubber. In this era of AIDS,
hepatitis, etc., surgical quality gloves are therefore made of rubber.
When someone talks about a latex glove, that is understood to mean natural
rubber latex. Natural rubber latex is created from the sap of the rubber
tree, which is then treated with a variety of chemicals to form the final
rubber product. Since it is a tree product, it contains proteins that some
people become terribly allergic to. Others (like me) develop contact dermatitis
to the chemicals that are added in processing rubber. Since I am allergic,
I now use particular brands of synthetic rubber surgical gloves that do
not contain these chemicals.
Someone wrote something about neosporin. Neomycin (one of the ingredients
in neosporin) is a frequent cause of allergic contact dermatitis.
Date: 6 Nov 1996 02:32:17 From: Ali Subject: breast vs. bottle
Interesting idea Ann! I'd have to wonder about that too, especially
since I nursed my daughter who had colic and my diet became so restrictive
that I was down to eating turkey sandwiches and drinking lots of water.
Needless to say, she was weaned at 5 months. She does have slight eczema
--I've been a lifer for 37 years, though I (of course) was bottle fed.
Wonder which group of bottle feeders has a higher incidence of eczema -
soy or cow based formula? Really interesting idea! Can anyone-maybe with
a medical or nursing background comment?
Date: 6 Nov 1996 02:56:51 From: Kelly Subject: Hand Eczema
Betadine shouldn't be anywhere near anyone with eczema -- maybe your
dentist isn't aware of this.
Date: 6 Nov 1996 05:29:10 From: Brigit Subject: latex, betadine, hands
Latex: I think that's exactly the same as rubber, that the two words
are just synonyms.
Betadine: As part of a serious regime worked out at a dermatology policlinic,
I was told to shower using Betadine Scrub instead of soap! While still
under the shower apply bath oil, afterwards gently pat dry, then apply
a vaseline/paraffin emollient. I suppose the Betadine bit was in for its
anti-bacterial effects.
Anyhow, it worked great for a short time, then no longer (of course).
But I've finished the bottle of Betadine Scrub since, with absolutely no
adverse effects. So perhaps it's like many other things, bad news if you're
allergic to it but otherwise neutral or even beneficial.
Hand eczema: oooh, aren't the vesicles horrible! When I have them they
feel to me like something inflicted from an external source, aliens perhaps
<G!>, I spend hours studying them in disgust, then perhaps piercing
them with a needle (which does not at all help, but I will keep doing it).
I found a book on skin diseases in the bookshop, written for aspiring derm
doctors, they have a special name for this particular manifestation of
eczema but no special treatment.
Date: 6 Nov 1996 07:03:46 From: Patsy Subject: My Input for the Day
This disease/condition/syndrome seems to affect everyone differently.
And what is truly awful is that there doesn't seem to be any one thing
that relieves or causes. What one person could roll in without ill affects,
another person can see a picture of and go into frenzies. I'm beginning
to believe we will see a cause and cure coming out of genetic research
and gene manipulation.
I have a wonderful hand soap that I've hesitated to mention for a couple
of reasons: 1. It may irritate some people's problems and 2. It's hard
to find. It's Kirk's Original Coco Hardwater Castile. It has coconut oil
in it, and is wonderfully mild. It's an old brand, and one that doesn't
promise eternal beauty, so maybe it's their marketing dept's fault that
one doesn't see it on the shelves very often. But it doesn't irritate my
skin.
Date: 6 Nov 1996 08:26:40 From: Ali Subject: hand eczema (continued)
Avon's "Silicone Glove" is a moisturizer. It's excellent.
Date: 6 Nov 1996 11:14:22 From: Fayez Subject: My Input for the Day
I have suffered from this condition since birth. I think finally I have
figured out how to make it less troublesome, if not completely rid of it.
I have been taking cold showers for years now. and I have found considerable
benefits. I feel less uneasy/stuffy.
In fact when I take warm or hot showers, that is when my skin flares
up. Also I use Vaseline whenever I wash and especially on the areas that
are dry. And I drink lots and lots of water.
Now I am not saying this will work for you all, but it has worked for
me, and it may help some of you.
On a side note, I was watching a general science show on public television.
The guest lubricated a strainer with a name brand moisturizer and another
with vaseline, then poured water into it. The vaselined one was the one
that held the water. He said that was the exact job that moisturizers do
for skin.
Date: 6 Nov 1996 11:42:37 From: Christine Subject: Gloves: Rubber/Latex
vs. Vinyl vs. Tactyl
Now I remember: Rubber and latex are the same, and vinyl is the other
kind. Rubber/latex can be irritating. I understand that the irritating
chemicals in latex gloves are in the accelerators. Vinyl gloves, on the
other hand, are good for general (non-surgical) protection.
Here's something else:
Allerderm in Petaluma, CA specializes in gloves. (1-800-365-6868) A
representative from Allerderm told me that there is a sterile, non-latex
glove called "tactyl glove" made out of tactylon that has barrier properties
equal to or greater than latex. The tactyl glove comes in sterile and non-sterile
versions. Vinyl, cotton and tactyl gloves can be ordered by calling the
above-referenced number.
Date: 6 Nov 1996 13:02:48 From: Brad Subject: hand (palm) eczema -
what makes it worse?
Ed, I suffered for many years from exactly the type of eczema you describe.
However, much of the eczema has been "in remission" for over 12 years.
What appeared to help me clear up the eczema on my hands was changing
careers. I discovered that when I feel my creativity is stymied my hands
will break out with eczema. I've had a few outbreaks since and in every
case it occurred when I was unhappy with my job.
I don't know what your work situation (or stress level) is like. Only
you know whether or not you feel creative and happy. If you're unhappy
you might consider what would really make you feel fulfilled.
I know I sound rather "airy fairy" but this all seemed to work for me.
Date: 6 Nov 1996 18:26:16 From: Rita Subject: Skin Discoloration, CHT,
etc.
Something new I experienced yesterday I thought I'd share with you all
who'll be interested.
I took my 8-month-old Jodi to see a new Pediatric Dermatologist (PD)
hoping to find out how and why some acne-like eruptions on her knees and
ankles areas take forever to heal. The PD was referred to me by our Pediatrician
who told me he is very good in his field. I was hoping that the PD could
collect some skin samples and send them to the lab to see if they're fungal
related.
When I saw the PD, I was a bit taken aback to find him at the most in
his late 30's. I somehow associates him being much older as he's so respected
in his field(couldn't help my stereotyping).
I told him that my baby had been suffering from skin discoloration and
acne-like eruption on the same areas since I had used Elocon .1% ointment
on her when she was about 3-4 months old. I explained to him that I had
stopped using any steroids since and that I had been against the use of
steroid.
Contrary to what I read and researched, he says that Elocon does not
cause skin discoloration, it's the inflammation which causes discoloration.
I didn't want to argue with him to say that when Elocon was in use, my
baby's skin was no longer inflamed and still her skin was gray and that
I could tell by seeing a fake 'glow' on her skin that Elocon was still
at work on the skin surface.
He then assures me that if I give his own mix a try, my baby will be
much better in 2 weeks. He says the active ingredient in his own mix is
hydrocortisone powder 2%, which is a very mild steroid and would be safe
for baby like my Jodi. He also mentioned that he used it on his own baby
when he had eczema. He says his mix can be applied all over her body twice
a day except for the groin area and near the eyes. He says side effects
are minimal so I need not worry.
I asked if he could collect skin samples to see if the acne-like eruptions
could be fungal related. He assures me that they are not and that even
if we send samples to the lab, the results are going to come back the same
as diagnosed. He first suggests that I use his hydrocortisone mix with
antibiotic but when he sees I am concerned over all these medications,
he says we could wait if I prefer.
He also mentioned Chinese Herbal Tea. His feelings towards the use of
CHT is that until and unless we know what really is in CHT, he won't recommend
it. He believes that though no steroids has been found in CHT, some of
these herbs are very potent and may cause damage in ways we have yet to
discover. Being in favor of CHT, I'm not too trilled with his comments
but at least he seems abreast.
The thing that strikes me the most is he is so confident in what he
says. He is the first dr. who seems to know what to do with my baby's skin
disorder. I have been wanting to hear from a doctor about a treatment which
would work for Jodi but now that he says it, I don't want to believe it.
What if my Jodi's eczema doesn't go away in 2 weeks; what if he says she
needs something stronger; then she is hooked. Her skin is not the best
she can have now but at least she is not hooked on steroid.
My husband was so excited about his claim he took the prescription to
the 24 hrs. pharmacist that same night. He said he wanted so much to believe
him. I'm really tempted too but am also afraid... what if it doesn't work
again...then we are back to ground '0'. Our herbal practitioner says the
more steroid is used, the longer it takes to treat.... Jodi also just came
down with bronchiolitis(sp.?). I am afraid if I use steroid to suppress
her eczema, she may develop asthma.
Sorry to drag on like this. It's just that re-telling my experience
somehow helps me to put things in perspective. Advice anyone?
Date: 6 Nov 1996 19:26:56 From: Brenda Subject: relaxation
I don't itch all that much these days, but I do find inactivity almost
impossible to tolerate. When I go to the cinema or any other fairly passive
activity, I'm constantly fiddling with my fingers. Perhaps the itching
is incidental and just offers the most obvious relief to the impulse to
be doing something, no matter what. Perhaps we're all hyperactive?
Date: 6 Nov 1996 19:27:01 From: Brenda Subject: Getting rid of toxins
>> One of their treatments is the heating up of the body, making it
perspire to flush out the blockage, getting rid of the toxins. <<
This doesn't work for me, but an acquaintance swears by a weekly sauna
to keep her eczema under control.
Date: 6 Nov 1996 19:27:03 From: Brenda Subject: hand (palm) eczema
- what makes it worse?
Over the years you're going to spend a lot of money on having your eczema
treated. Why not think about investing the money in a dishwasher? My hand
eczema has improved a great deal since I've had one.
Date: 6 Nov 1996 19:36:04 From: Brenda Subject: breast vs. bottle
I'm no physiologist, but I understand that the boost to the immune system
is passed to babies very early on, and perhaps it's only important to breast-feed
initially and change to formula at a later stage if you feel this is necessary.
Date: 6 Nov 1996 22:58:56 From: Ann Subject: hand eczema and latex
Ed, I'm sorry to hear about your eczema and the major impact it has
had on your career. Your letter is a poignant example of the havoc that
"just a rash" can cause. I might have gone into medicine myself if my hands
had not fallen apart during my first Biology class dissection! (I think
it was the formaldehyde). I'm sure you, as a doctor, are aware of the deadly
potential latex allergy has.
It sounds like you have eliminated all contact with latex from your
life, but for others who may not be aware, PLEASE READ THE FOLLOWING. Some
people who get a skin reaction from latex eventually go into anaphalactic
shock from wearing the gloves or sometimes just from touching a rubber
toy! So if you react to latex or test positive for the allergy test for
latex, take it seriously! Could you mix the Cetaphil and antiseptic yourself?
Drug companies take forever to develop suggested products.
Date: 6 Nov 1996 23:37:18 From: Ralph Subject: latex, betadine, hands
I tried Betadine scrub once or twice on my hands and had terrible, absolutely
ghastly reactions. The skin was coming off. I was in pain for several days.
Anyway, this just shows that everyone's eczema is different.
Date: 7 Nov 1996 00:57:00 From: Ali Subject: New subscriber
Something I've used that's helped me a great deal is a moisturizer by
Avon called Silicone Glove. I have dyshydrotic eczema on my hands and get
vesicles and cracks. I also work with books which draw moisture from my
hands. Silicone Glove seems to keep them protected from the elements and
soap for several hours after each application. It's also possible to use
another lighter moisturizer on top.
Date: 7 Nov 1996 04:56:36 From: Brigit Subject: update
Here's an update of what I've been up to in order to make myself (at
least feel) better:
-
I had to stop taking the CHT because of a few trips away from home, and
it has made NO DIFFERENCE WHATSOEVER. My eczema is still pretty good. So
for the time being, I won't be going back to the Chinese herbalist.
-
Taking some of the dosh that I saved by no longer buying the Chinese stuff,
I went and got some Pycnogenol (discussed a long time ago) as well as Quercetin.
The quercetin capsules contain the Bromelain that Kelly said you need with
it as well, they're made by Solgar. Too soon to know if it does anything.
-
I haven't been able so far to find out any real quantitative and/or qualitative
data on borage (starflower) oil and EPO, I.e. how it works and which one
is better. I still apply the stuff topically, though, and it still helps
me (just switched from EPO to borage).
-
I'm still working out how to apply the results of the allergy blood tests.
Guess that I will go for one group of foods at a time (total elimination
for two weeks, then lots of in one or two days).
Date: 7 Nov 1996 09:23:50 From: Mary Subject: Eczema or Rosacea?
Since I have heard much better advice for eczema from this list than
from most of the doctors in my life I thought I would ask for some advice
about my latest problem.
I've had eczema all my 40 years and changes to my diet, steroid creams
and anithistamines generally keep it in check except for my hands which
are like the hands of so many people on this list. But in the last few
years I have begin having real problems with my face -- not breaking out
in eczema as I have come to know it but with getting really really red,
flushed, hot and burning etc. The flares come and go and there are days
when my face looks perfectly normal but the flares are steadily becoming
more frequent and last longer -- days even weeks at a time, now.
The dermatologist I have seen for a decade says it is just my eczema
flaring and she pushes me to try ever stronger steroid creams on my face.
But I quickly found that while steroid creams work for the eczema on my
hands and body (at least temporarily) they did nothing to help my face
and only seemed to make matters worse.
Over the last two months the flares began to involve my eyes which became
sore and dry and the eyelids puffy and swollen. My dermatologist finally
sent me to someone else for a second opinion and he asked me a lot of questions
and saw my face full flare and declared himself convinced I had rosacea
on top of my eczema. Treating the eczema topically, he said, would only
exacerbate the rosacea and treating the rosacea topically would exacerbate
the eczema.
He is recommending long-term oral antibiotics. From what I have read
online that is not often a very successful treatment for this condition
which like eczema is poorly understood and can't be cured only "managed".
Has anyone else in this group been diagnosed with rosacea and eczema. If
so any advice would be appreciated.
Date: 7 Nov 1996 10:42:23 From: Fayez Subject: Skin Discoloration,
CHT, etc.
Rita, I agree with you in that you don't want to get you baby hooked
on steriod.
Ii myself have resisted going to dermatologist for this very reason.
Americans have become accustomed to, and almost demand a quick-fix. that
has forced many doctors to use steriod.
My eczema has not been too bad, it's become something that is just a
part of life. There are things I can do, and things I can't. but at least
I am not hooked on some drug. Good luck in your search.
Date: 7 Nov 1996 11:15:46 From: Robert Subject: Eczema or Rosacea?
I am an eczema/rosacea combo person. I tried at first oral antibiotics
but had an alergic reaction. I than began with a topical antibiotic and
it seems to have done the trick. It took a while (many months), but I no
longer have a rosacea problem (it has been about 6 or 7 years since the
treatment).
Date: 7 Nov 1996 11:17:49 From: Robert Subject: Miscellaneous musings
Goats milk worked for me when I was a baby... the rash (eczema) went
away for quite a few years.
Date: 7 Nov 1996 11:21:49 From: Robert Subject: Doxepin/Scalp itching/Sinuses/science
talk
Kristine, I tried Doxepin a few weeks ago. I literally slept for 3 days.
The last time I tried it I got a ticket for going through a stop sign.
I was also in a stupor like you describe. I am typically very sensitive
to medications, and may not be a very "normal" person in that regard.
Date: 7 Nov 1996 11:50:37 From: Shelley Subject: hot and cold
We have had many discussions about hot vs cold. Check the archives.
In my experience, hot water and saunas are the WORST things for my skin.
They feel great at first but for me, the long-term
effect is itchy, blotchy,
dry skin that lasts for weeks, no matter how much moisturizer I apply afterwards.
For me, COLD is the way to go. Readers, be prepared to experiment to see
what works for your particular condition. There are all kinds of theories
about flushing out toxins. I drink lots of water and use the least possible
amount of salt.
Date: 7 Nov 1996 11:50:45 From: Shelley Subject: Meditation/Relaxation
Richard and Brenda: Yes, I too have the same problem with meditation/inactivity.
I find it difficult to sit still. So many people have told me, "If you
meditated you'd relax." "Well, guess what? Meditation makes me itchy,"
I reply. The only time I can really relax that deeply without being itchy
is when I go into a trance from anaphalactic shock. A friend said "Why
can't you go into that trance without the anaphalactic shock?" I guess
I could if I really tried. However, my brain/body associates that state
with a life or death emergency situation. It creates that state of mind
in reaction to the shock. To do it consciously on my own, without being
naturally stimulated/forced to do so to save my life, would require a LOT
of energy, which I don't feel motivated to do. Plus, when I go into that
trance, I am really out of it afterwards. I can't just go into that state
and then calmly come out and resume activities the way other meditaters
seem to be able to do. I have to immediately go to sleep to recover from
that trance.
I've done biofeedback in efforts to increase my ability to meditate/relax
more easily, but it didn't work. The hook-up with a machine seemed to interfere
with my internal need for autonomy. It made me feel irritated and itchy
and I couldn't relax until they removed the connection. I think that my
body didn't want to learn a new technique. My body seemed to be saying
"I already know how to get in touch with myself. Don't impose some machine's
template on me. Leave me alone. It's not that I don't know how to relax.
It's not a matter of ignorance. I can choose to relax if I want to. I just
do it only when I really need to."
Anyway, that was a long-winded way of saying I agree with you.
Date: 7 Nov 1996 17:34:07 From: Amy Subject: Peanuts REPLY
Peanuts and peanut butter make my nose itch and then, who knows how
long later, the rest of me.
BUT the thing I want to say about peanuts is that most of them are grown
alternately with cotton. Cotton is one of the most highly pesticided crops,
and I doubt the cotton carries away all the effects. And that leads me
to my next concern: cottonseed oil, which I've seen in many over the counter
food preparations, from things as supposedly innocent as granola bars.
I'm no organic guru, but I do bet the pesticide issue is what is contributing
to this growth in peanut "allergies."
On the subject of allergies altogether, I've noticed that the stronger
I feel, that is the better my immune system, the more of my irritating
foods I can tolerate.
Date: 7 Nov 1996 17:42:41 From: Amy Subject: Herpes
Just a note: as an owner of both herpes and eczema, I can say they are
each awful in their very own way.
Date: 7 Nov 1996 18:19:27 From: Amy Subject: Starflower oil
The flowers of borage are beautiful blue stars. I eat the stars which
have the seeds on the inside, but I don't think that gives me as much as
the extracted oil, which I take also. I've read that borage also helps
to get off steroids, by the by, but still take it now that I'm far away
from them, for the high GLA.
Date: 7 Nov 1996 18:37:06 From: Gayle Subject: saunas and sweat lodges
I find that saunas and sweat lodges make my skin better for a couple
of days following the moist heat, forcing perspiration. It does itch like
crazy for the first 20 minutes. Drink lots of water first to enhance the
perspiration.
Date: 7 Nov 1996 19:32:46 From: David Subject: hot/cold + relaxation
etc.
Hi, I find that my skin is a lot worse if I'm hot (I do wonder how you
guys in the States handle it - at least here we can be guarenteed of fairly
cool temperatures most of the year, except when our air conditioning is
duff!). Some people think I'm mad when they see me working to the shops
with no coat etc in a short sleeve shirt in the middle of winter :-) Summer
is a nightmare.
Sometimes I find that's the best way to stop myself scratching - go
and stand outside in the freezing cold for a few minutes (preferably with
a cold breeze!).
However I find a bit of steam (for example standing in the same room
as someone having a shower) is quite nice and relaxing. Hot water completely
does my skin in - but strangely enough it stops the itching for about 2
minutes; unfortunatly I sometimes get tempted to almost scold my arms -
that stops the itching for a while - but it then comes back with a vengeance
and gets really bad.
As for relaxation - well yes; I'm not very good at relaxing at all.
I find it difficult to sleep at night, although I can often get a really
good hour or two sleep in a nice soft chair in front of the TV. Sometimes
a nice soft chair (padded all around including the arm rests) is very good
- I can sleep in a hot room in a chair a lot easier than I can in bed.
I don't think the weight of the bed cloths helps at all in bed. However
following up from what people said a while ago, I do find I tend to sleep
better when I've got a bad cold or something; I don't know if its the aspirin
I take or the effect of the cold itself (perhaps just making me tired?).
Re: the talk about antibiotics etc - a few months back my doctor reckoned
that I had infection around a lot of my hair folicles and that was actually
making the skin worse on my arms and legs. He gave me Erithromycin which
helped quite a bit; he kept me on that for about a month and it really
helped quite a bit; however after afew more weeks the effects started to
fall off - so much for the antibiotics.
Date: 7 Nov 1996 19:36:08 From: Edward Subject: surgical scrub soap
You wrote: "Could you mix the Cetaphil and antiseptic yourself? Drug
companies take forever to develop suggested products."
Thank you for the suggestion, but that's hard for me to do for the same
reason drug companies take so long to develop and test new products. We
live in a litigious society, and in medicine anything that doctors and
nurses do needs to meet an appropriate standard of care. So to mix one's
own surgical scrub and claim that it provides good enough anti-sepsis -
that won't make it. You don't find too many "homemade" products at hospitals
- the legal risk is just too great. Some company out there should be interested
to produce gentler surgical soap products, since I think there should be
a market for it.
Date: 7 Nov 1996 20:53:05 From: Patsy Subject: hot/cold + relaxation
etc.
Dave, I agree with you that cold helps. Perhaps it freezes itch reactors
in the skin, I don't know. But I'll be wearing sandals this winter until
they cart me away with a net.
Date: 7 Nov 1996 21:55:34 From: Cheri Subject: Eczema or Rosacea?
Hi Mary - Here I am - your sister in rosacea. Its nickname is the "Disease
of the Celts" because of the larger incidence in those from those areas.
I grew up hearing about my beautiful rosy cheeks, living where the snow
blowing on my 4x a day trudge to and from school was busy breaking capillaries.
(Geez, I sound like my father!) Later, I was to see my classmates breaking
up at the way I blushed so easily. By adolescence, the blush had turned
to hives. Then suddenly I was 40 and my finger excema was suddenly appearing,
and I was having "flares" just like you described under situations of spicy,
hot, alcohol, high emotion, heat, a few rays of sun. Then I got all the
hot flash jokes, but I know what this is and it isn't a hot flash!
One thing we all know here is that what works for one is poisonous to
someone else. Bunches of Drs. have recommended Alpha Keri to me for my
baths, but to my daughters and I, it's like sitting in "skin remover".
Date: 8 Nov 1996 03:59:26 From: Brigit Subject: Rita- new PD
Rita, GO FOR IT!!!
If there's the slightest chance that this new PD you found can help
your baby, then let him try!
I *know* what it's like to get your hopes up and then see them smashed,
don't think I don't. But fear of disappointment must not block a possible
road to improvement. Yes, it may well happen -- it usually does, even.
However, if there's a chance of one in a billion that your little girl
is spared the agony that so many on this List (not myself, thank goodness!)
have experienced all their lives, then you must put aside your fears, for
her. Jodi is not the one who would suffer from a let-down: you and your
husband are, as her parents. And that would be very, very tough. But she's
the one who will benefit if it works!
She's not going to be "hooked for life" from one treatment. Steroids
are not good for you, but they're not *that* dangerous. It's not as if
he proposes to put her on heroin.
If you remember from previous postings, Ralph had his little boy treated
and it worked; the child was spared the suffering that his father is still
going through. Please, PLEASE give it a try...
Date: 8 Nov 1996 09:54:16 From: Ralph Subject: saunas and sweat lodges
If you use a sauna, does it have to include the steam? I don't know
much about sweat lodges, but my recollection is that there's no water involved.
Could you give us some more details of the process that works for you?
Date: 8 Nov 1996 10:16:58 From: Fayez Subject: hot/cold + relaxation
etc.
I read an article a while back from a medical magazine. Some researchers
had done a study on people who take cold showers as compared with people
who take hot showers. Some of the differences they listed among the cold
showerers, was slower aging signs, better blood flow to the extremities,
less instances of colds and flus.
Date: 8 Nov 1996 10:19:42 From: Dave Subject: Eye problems when cycling
in cold weather ...
Whoever it was who suggested "Creamy Petroleum Jelly" (sorry, I can't
remember who it was!) when cycling in bad weather - good idea. I bought
some "White Petroleum Jelly" from Boots (don't know if that's quite what
you suggested, but it does the job). Works very nicely.
Date: 8 Nov 1996 10:25:09 From: Fayez Subject: Meditation/Relaxation
I am reading a lot about stress and meditation. I have a question? We
are all concerned about our bodies. Just how many of us exercise??
I for one don't, but I am trying to work my brain back into it.
At least for me exercise rids my systme of any stress. But it also has
a tremendous benefit for my skin. When I was working out in school almost
daily, my skin was in great condition. I could do anything I wanted.
Date: 8 Nov 1996 10:50:08 From: Ali Subject: Starflower oil
I've tried borage seed oil capsules, not for my skin, but for PMS. It
did ease the symptoms of that, but also caused cystic acne. I also have
the delightfully unlikely combo of atopic dermatitis with acne! It's a
challenge to find medications to address the acne which won't worsen the
eczema.
Date: 8 Nov 1996 11:06:30 From: Ali Subject: Meditation/Relaxation
I'm no physician, so I don't make diagnoses, but if you mention you
find it completely impossible to relax totally, I have a few thoughts to
offer.
One is to try a relaxation tape-whether it be a monologue (from one
of the famous self-help people, I.e., Joan Borysenko, Wayne Dwyer, etc),
or a musical relaxation tape (one of those nature sounds things). This
way if there are many stressors in your life, you don't have to sit or
lie in silence trying to concentrate only on a mantra or counting and ultimately
being consumed by your own thoughts.
Obviously, any of the main stressors such as death, divorce, etc. will
make it extremely difficult for you to evoke the "relaxation response"
on your own. If none of these types of things are going on in your life,
you may need to think about whether there's an underlying emotional disorder
like anxiety or depression. Obviously the stress these generate is going
to affect your immune system and worsen your eczema. Perhaps treating these
effectively will reduce the stress and consequently the flare-ups you experience.
Date: 8 Nov 1996 15:27:28 From: Shelley Subject: Relaxation
Having had severe eczema since infancy, my experience is that eczema
shaped my personality, rather than my personality affecting the eczema.
For me, emotional/ psychological conditions exacerbate a pre-existing physical
problem. My skin condition has mostly had negative effects on me psychologically,
but I've also developed an emotional strength that has served me well in
all aspects of life.
Date: 8 Nov 1996 16:05:05 From: Patsy Subject: Adult vs Child
I am just curious and hope someone with more knowledge than mine will
address this: is there a difference between childhood-onset eczema and
adult eczema? Is it treated differently? Are there treatments that work
for kids, but aren't useful to adults, and vice versa?
Date: 8 Nov 1996 20:15:10 From: Ali Subject: New subscriber
I have had hand eczema for about 15 years. One of the best things I've
come across is "Silicone Glove" by Avon. It's a moisturizer. No, I'm not
an Avon Lady!:) Silicone Glove lasts through several hand washings and
you can even use another light moisturizer on top of it. It's not greasy
either -- which would be a concern for me in my work.
Date: 8 Nov 1996 21:14:21 From: Brenda Subject: Meditation/Relaxation
A lot has been written on this list about stress and a number of people
have reported that their eczema does in fact increase with stress, but
we seem to be talking about something else here.
O.K., this is a sample of only 3, but I find that no matter what my
mental state, it is physically impossible to be totally relaxed. Every
night on settling down to go to sleep I have to consciously tell myself
to unclench my hands and teeth. Is this a personality type? It would be
enormously interesting to have a psychological profile of eczema sufferers.
I'm not saying that there aren't heaps of other causes, and heat certainly
seems to crop up with great frequency. In Auckland it gets pretty warm
and humid in the summer and I find it quite distressing, but even so, the
heat seems to be generated from inside rather than outside. The climatic
conditions just seem to exacerbate the problem. However, you do have to
wonder if a particular type of person is prone to react to heat, allergens,
whatever, while the rest of the population remains totally unaffected.
I don't quite know just what I'm trying to ask here, except perhaps
what is it, apart from the eczema itself, that makes you feel you differ
from the general population? Perhaps the multiple causes of eczema make
this question just too hard, but if anyone has any comments I, for one,
wouldbe really interested to hear them.
Date: 8 Nov 1996 21:28:37 From: Ralph Subject: Silicone Glove
I also have hand eczema, and I would like to try this stuff. How long
have you been using it? Like many participants here, I've noticed that
some things work wonders for a while, then stop working or even start to
cause trouble. Of course, I'm sitting here hoping that Silicone Glove might
be the exception to this general rule.
Right now, Aquaphor is the emollient I like best. I learned about it
from Shelley, in this group.
Date: 8 Nov 1996 21:54:15 From: Ann Subject: miscellaneous
COTTON: What's so safe about cotton? It's a plant; it must have protein
(as in allergen) in it. So why does each and every eczema sufferer feel
safe in 100% cotton???? Now I hear that cotton crops are heavily treated
with chemicals and that cotton is grown on the same soil as peanuts (deadly
for me), and I'm REALLY beginning to wonder. Anybody else ever worry about
developing a cotton allergy?
LATEX: Cheri, and anybody else suspecting a latex allergy: go to an
allergist and ask to be RAST tested for latex allergy. They draw some blood,
and send it off to the Mayo Clinic; so you don't risk a reaction to a scratch
test. The test not only tells you if you are allergic to latex, but also
how severe (on a numerical scale) your allergy is. Of course, any test
is not 100% accurate, but this is a good starting point to find out where
you stand. As I recall, the test is not as expensive as you would expect
and you can get a great deal if you also have other allergens tested at
the same time.
EXERCISE: I confess to being a hardcore gym rat. In fact, I just moved
my power tower (a free standing chinning bar) inside to our new den. Exercise
seems to have no effect (positive or negative) on my eczema, provided that
I don't do something like run bare -legged through a field of weeds! It
does help me psychologically as I hold the thought that even though my
skin can't look great, the muscles under it can! I used to swim in chlorine
and I was never sure if that bothered my skin or not. I do know that after
swimming I find it very hard to resist a hot shower. Nowadays I exercise
almost daily: either weight lifting or running 5 hilly miles. The weights
don't bother my hand eczema as my palms are always almost clear (knock
on wood).
Date: 9 Nov 1996 00:32:10 From: Edward Subject: Rubber allergy
First, about adhesive tape: some adhesives contain natural rubber latex,
and also certain bandages. There are also many brands that do not. A nice
list of latex containing products and latex-safe products (both in the
hospital and in the home environment) can be found on the Web, at http://www.latexallergyhelp.com
- after the home page loads (this is the page for ELASTIC, a group devoted
to latex allergy) look down at the bottom and click to go to the appropriate
sub-page.
Someone else posted the comment a few days ago that they were allergic
to "adhesives and latex" - that might be one and the same allergy. (That
same post indicated that the writer had a problem with an exercise bike
aggravating her hand eczema, and she blamed it on friction against the
hands if I recall. Well, look at the thing you hold on to while you are
on the bike. Is it a rubber grip? Is it friction, or could it be rubber
allergy?)
Second, how do you know if you are allergic? There are 2 types of latex
allergy. Type 1 latex allergy is allergy to the protein in natural rubber
latex, and it causes systemwide allergic reactions affecting parts of the
body even distant from the point of contact. Typical symptoms include rhinitis
(runny nose), conjunctivitis (red eye), hives (raised welts on the skin)
both at the point of contact and distant from the point of contact, and
in severe cases anaphylaxis (difficulty breathing, falling blood pressure,
and it is possibly life-threatening). An allergist can test for type 1
latex allergy using a skin prick test with latex protein antigen (the most
reliable method) and possibly also a blood test (RAST test or Ala-Stat
test). The other common variety of latex allergy is type 4 allergy, which
is allergy to the chemicals added in producing the rubber product. Type
4 allergy produces allergic contact dermatitis, and the skin rash is limited
to the point of contact. An allergist or dermatologist can test for type
4 allergy using patch testing - small amounts of the suspected allergens
are applied to the skin, and then one checks for a local rash 48-72 hours
later.
If your reactions to rubber are skin reactions only, and if they are
limited to the area of contact, that would suggest a type 4 allergy. My
opinion is that anyone who thinks they have a problem with rubber should
be tested by an allergist. The reason is simple - if you ever need surgery
or emergency medical care, that is not the time to find out that you have
a severe allergy to latex.
Date: 9 Nov 1996 01:30:26 From: Edward Subject: surgical scrub soaps
Ralph, I did look at that Web page you mentioned, and it specifies Iodophor
.75% At my hospital, I know that the triclosan in the O.R. is 1% So, why
those concentrations? The rep at Baxter Healthcare probably hates me by
now (I complain at them all the time about their products), but that is
who we buy from, and I'll ask. I hope there's good science behind the concentrations
of antiseptics found in surgical scrubs. I would hope that, before a product
comes to market, that the manufacturer has tested it to both document efficacy
and minimize allergenicity or skin irritation from the product. It seems
obvious that the potential for skin irritation is decreased if you use
the lowest concentrations of chemical possible.
Since I realized that I have rubber allergy, and then went and read
the literature myself, I have had to fight with my hospital's administration
to make the operating room I work in safer. It seems they would rather
potentially disable me with latex allergy rather than spend an extra dollar
and change to purchase powder-free latex gloves for the nurses and my colleagues.
(For those unfamiliar with this subject: latex protein binds to the cornstarch
powder in the gloves, and this allows it to be released into the air when
gloves are removed. Aerosolized latex can sensitize susceptible individuals.)
I wear only certain brands of synthetic surgical gloves, but I INSIST that
everyone else who works in my room, and who wears latex gloves, must use
a powder-free brand. There is hope, though - I have won this battle, at
least for now.
Date: 9 Nov 1996 06:20:08 From: Christine Subject: Synthetics
Allergy Society of South Africa (ALLSA), see: http://www.gem.co.za/ALLSA/eczema_f.htm
My knees break out with eczema after kneeling on my carpeting. My carpet
doesn't have wool (builder's grade). I understand my carpeting is mostly
nylon. Your thoughts, please.
Also, for The Merck Manual, see:
http://www.merck.com/!!roWMo0jYYroWNe0FJm/pubs/mmanual/html/mkhfkkcc.htm
Date: 9 Nov 1996 06:25:56 From: Patsy Subject: Synthetics
And I would stick my neck out to suggest I haven't found topical steroids
to be any more effective than OTC stuff. As far as my eczema is concerned,
they're just one more thing in my arsenal. And like most folks, I attempt
to avoid them as much as possible. I am taking 5mg of prednisone a day
for a couple of weeks right now. My doc is hoping this will prevent another
major flareup for awhile. I can't even tell it's doing anything for the
itching!
Date: 9 Nov 1996 11:13:39 From: Kelly Subject: Synthetics
Maybe your perscription is of a low dose cause my skin falls over laughing
at OTCs.
Also 5 mg./day is low, do you notice that it helps you? And did you
ever find out what was attacking your foot in the first place?
Date: 9 Nov 1996 12:52:56 From: Brigit Subject: Web info on oils
Just in case I'm not the only one who's interested in what it is exactly
that we slop onto our skins, here's a Web site providing specs of almost
every vegetable oil ever used in cosmetic or medicinal creams:
http://www-showroom.eunet.fr/internet/verangla/ghuilveg.htm
Date: 9 Nov 1996 14:35:58 From: Dan Subject: Skin Discoloration, CHT,
etc.
I have used oral and topical cortisone to treat my eczema but have not
used any in many years. I hit rock bottom while being treated by a dermatologist/allergist,
discontinued that treatment and went to a nutritionist who was also an
MD. I improved so much. My problem seems to be a malabsorption problem
of certain vitamins so my treatment was a digestive enzyme along with high
doses of vitamins. I still have some eczema but it has not been that extreme
since 1987.
My advice would be to look to a nutritionist not a dermatologist. In
my experience, dermatologists just treat the symptom not the cause. It's
not good to stay on the steroids for too long and then you're back to where
you started when you go off.
Also, my brother had eczema as a child and outgrew it so there is hope
that she will outgrow it.
Date: 9 Nov 1996 16:26:47 From: Kristine Subject: childhood eczema
vs. adult eczema
This message is in response to Pat's question about childhood eczema
vs. adult eczema. I'm not an expert and don't know if any research has
been done in this area. All I know is that I had less severe eczema a child
in different areas of the body. It would frequently be in the crook of
my arms, back of my knees, neck. It was just treated with steroid creams
like (I can't really remember that far back) Kenalog. But it is just totally
different from adult eczema in my experience. They had me avoid food I
was allergic to and gave me allergy shots for 18 years. I don't get allergy
shots anymore because I felt they stopped being effective around 16 years
of age.
My childhood eczema seemed to totally disappear by the age of 11 or
12. I thought I would never have to deal with it again and was relieved.
Went back to eating food I was allergic to like chocolate, milk with cereal,
etc. I suffered no repercussions from living like a "normal person or teenager"
for 4 years and had a great time. Then when I was 16, my body hit back
hard. I started to get a strange dark purple, red spots of irritation on
my face and then after time they opened up and remained open with oozing
cuts and sores. My parents waited a few months before taking me to a dermatologist
on the advice of the allergist. That was the first time I heard the words
severe atopic dermatitis.
He started me on predisone and prescribed steroid creams. No one said
anything back then about the scars steroid creams would leave on my face.
So, word of warning, use them sparingly on the cuts on your face or not
all if you can avoid it. This was a cycle I would go through every 3 months.
It was until I was about 22 and read the book Fit for Life, that I got
the idea to eliminate dairy products my diet. Relief became immense when
my face appeared to change back to normal (almost). I guess my point is
that if your child's eczema seems to disappear (like they outgrew it) around
10 or 11 or 12, don't be misled by a false sense of security and please,
please don't let them enjoy all the things they were formerly allergic
to. Their bodies may pay big time for it later.
Date: 9 Nov 1996 17:24:51 From: Brad Subject: Relaxation
Shelly, You have started a very interesting discussion which I believe
is at the core of our eczema. For me, the question of why we suffer physically
begs the metaphysical question of who we are. Are we these bodies?
I believe we're thought or spirit who use these bodies as vehicles to
traverse the physical plane. The way an automobile mobilizes us physically
is a perfect analogy. Only mind or spirit is "behind the wheel".
The problem is we have over identified with our bodies. It's like believing
we are the car we drive. Our bodies are a creation of mind. By "mind" I
don't mean the brain or a function of the brain. The brain is also part
of the body. What I mean by "mind" is eternal thought, and thought precedes
body. Our thoughts are powerful because they are creative. Everything that
physically exists existed first as a thought in the mind of its creator.
Certainly everything man-made existed first as a thought.
I once had the experience of myself as thought while on a plane en route
to Hawaii. As we flew over the deep, blue Pacific it occurred to me that
the essence of "me" has no physical locality. The center of my being is
always in the same "place" regardless of where my body is. Again, my body
is like a car, and my eyes are the "windshield" through which my spirit
or thought looks out onto a physical landscape. The real "me" exists as
perpetual thought.
Every concern we have in this life concerns our bodies. Without our
bodies we would have nothing to fear. However, our bodies are "neutral".
They have no "mind" of their own. They respond to our thoughts. Our bodies
really perform according to the direction of our thoughts.
I do have a point to all this...:-)
The point is: Our bodies don't dictate our personalities. Our bodies
only reflect back to us the thinking of our minds. For this reason medicine
can't heal the "cause" of our suffering. Medicine has never "cured" anybody
of anything. Sickness or dis-ease reoccurs to the body over and over again
until we put our bodies aside. We have given medicine only an illusion
of power. We heal ourselves.
I believe our eczema is caused by our attitude of mind. We manifest
eczema to express an "inner" irritation. Eczema exposes our inner thoughts
by irritating the skin. Eczema demonstrates a lack of inner peace due to
a deeply rooted "irritation" we have within our thought system. Our task
is to ferret out that irritation. When we discover what it is and do something
about it then our eczema will vanish.
Therefore, I believe the cure to eczema occurs after we go deeply within
and ask ourselves "Why do I suffer from eczema?" and patiently wait for
the answer. The answer *will* come. The answer came to me, and my eczema
has been in almost total remission for many years. When it comes back I
know I'm not at peace with some aspect of my life. I'm irritated and thus
my skin is irritated. I have to discover what my irritation with life is
and do something about it. "Doing something about it" means surrendering
the source of my irritation to a higher power for correction and healing.
The healing *always* comes when I ask for it.
This is my perception of what's going on with eczema anyway.
Date: 9 Nov 1996 17:54:38 From: Sherry Subject: Meditation/Relaxation
Dear Fay, Just to let you know that I feel better when I exercise, but
I scrarch like crazy. I am thin 104 1bs., but when I run on the treadmill,
I sweat. As a result, I am quite a sight running and itching. I have tried
wearing less and less clothes when I run. If I time it just right, I can
get to the gym when most people are not there. Then I blow the fan directly
on me as I run for about two miles three days a week.
Date: 9 Nov 1996 21:20:10 From: John Subject: help
I am taking phenagan tablets, they make you sleep, reduce the eczema,
the only problem is getting up, if I take one early evening, I will be
very drugged till late morning.
They are prescribed, the doctor could reduce the quanity, mine are 25mg,
so you could try 10mg.
Date: 9 Nov 1996 21:36:06 From: Brenda Subject: Relaxation
I didn't really see it as the personality affecting the eczema, but
rather that whatever it is that causes physical tension and restlessness
(which often appear to be quite unrelated to presence or absence of stress
in your life) also has some bearing on the development of eczema. Whenever
you hear of babies suffering from eczema you realise that stress can't
be the prime cause. If a chemical imbalance in the body can cause schizophrenia,
could it not also create a condition conducive to eczema? I am admittedly
deeply ignorant in this field, but this puzzling condition leads you to
all sort of speculations.
Date: 9 Nov 1996 21:45:12 From: Brenda Subject: cotton
Is it perhaps not so much the material, but the fact that your skin
can breathe through it? The alternative is usually synthetics, which often
make your skin clammy and hot. How about silk? Does anyone have any problems
with that? Or does the price tag on silk underwear bring on such a severe
outbreak that you can't even contemplate it?
Date: 9 Nov 1996 23:00:14 From: Ann Subject: rugs and eczema
Christine: The reason your legs break out when kneeling on a rug is
because of the dust mites and their waste products in the rug. Even a 100
% non-allergic rug is full of dust mites. Even a powerful vacuum can't
get all of the dust mites out of a rug. If it's an area rug, washing it
every week or two in HOT (130 degree water) will kill the mites. Hot washing
also tends to kill rugs so you may end up with bare floors, which is the
best situation for a dust-allergic person anyhow! There are some treatments
available to kill the mites in wall to wall carpet, but then you get into
chemical exposure.
Date: 10 Nov 1996 15:04:32 From: Gayle Subject: saunas and sweat lodges
I only have experience with wet saunas. I am suspicious of dry heat.
Native American sweat lodges use steam. They put in the red hot rocks and
then splash water or herbal tea over the rocks.
Initially, there is the discomfort of heat with my eczema. The heat
in the sweat lodges is very intense. It is hot enough to kill any bacteria
(depends on the medicine man, I have heard some get blisters from the heat).
I think the benefit is from the sweating out any toxins. It helps for several
days.
I think my skin is a victim and not a cause of my discomfort. My comfort
level is a predictor (by two days) of what I will look like.
When a sauna or sweat lodge is not available to me, about every two
weeks I will soak in a hot tub with bath oil with tea tree oil in. That
is almost as effective as the sweat lodge. The immediate effect is discomfort.
Afterwards I may cool myself off with increasing cool shower or pack myself
with gel packs from the refrigerator.
Date: 10 Nov 1996 20:04:38 From: Edward Subject: rugs and eczema
A simple idea: if your knees or legs break out after kneeling against
the rug, why not try putting a folded cotton towel down so that you can
kneel against that rather than contacting the rug? It would cushion your
knees (eliminating friction) and eliminate contact with any allergens in
the rug. As an alternate, you might consider looking in a gardening shop
for one of those knee pads that are sold for gardeners to use (to cushion
your knees while planting or weeding).
Date: 11 Nov 1996 10:19:12 From: Michelle Subject: New subscriber
I have suffered from eczema for my entire life and have had a variety
of treatments prescribed, none of which truly worked until I took charge
of my life and began to research the subject extensively (over three years
of research).
I am pleased to say that my condition is under control through the use
of specific, non-chemical formulations. I do believe that the condition
manifests itself in many ways and is decidely aggravated with exposed to
toxins and chemicals, covered with any form of animal fat (which acts as
a occlusive barrier), and has insufficient lineolic acid.
I also have found that individuals in humid climates seem to have a
better prognosis than individuals in dry climates.
One very important note: moisture is critical to effective external
treatment.
Date: 11 Nov 1996 12:23:59 From: Julia Subject: Julia Buck's Wet Wrap
Reference
I think the wet wraps are helpful for the following reasons:
-
They soothe the skin.
-
The deter the spread of infection
-
They make it more difficult to get at the itchy bits
-
They make smaller amounts of steroid cream more effective
-
They rehydrate dry skin
Recent discussion on the list suggests that evaporation may also be beneficial.
The main downside is that they are very time consuming. I also understand
that you must be careful to reduce the amount of steroids as they become
more potent under wet wraps. I'd be interested if anybody else has opinions
of the drawbacks of wet wraps. For us they have been wonderful.
Date: 11 Nov 1996 12:27:07 From: Kelly Subject: tea tree oil
I use tea tree oil (Melaleuca) whenever I can but I apply it topically
diluted with glycerine. I can only use it when my husband is away on business
cause it knocks the wind out of him.
Date: 11 Nov 1996 13:10:52 From: Kelly Subject: New subscriber
After I was here a couple of years, I ran across some research that
said eczema was nonexistent in tropical regions, where I live is considered
tropical, we had our first cold day yesterday of 57 in the morning and
I shivered just getting the paper outside the door.
The point being, it's not just necessarily the humidity but also the
heat, they keep the pores open and flushed, dry and/or cold keeps them
closed and trapped. I guess you have to start living in this climate from
birth to work. I also have the problem with sweating and I have gradually
increased my exposure to this climate, Halloween weekend I went to Disney
and was in the heat all day long on Friday then on Sunday, we went fishing
for 4 hours, I got fryed on that one, can't use sunscreen yet.
Even 3 years ago if I had done either one of these activities I would
have ended up nursing my skin but I had no reaction from either one this
time. Because of sweating, I have to be real careful with clothing, I now
use liquid Calgon laundry water softener and it has made a huge difference
in clothing reactions especially when sweating.
Date: 11 Nov 1996 13:50:21 From: Sherry Subject: New subscriber
No one knows more about under the eye problems than me. First you may
have to use an ointment like Westcort to clear this up. This requires a
prescription. If you are nursing, I'm not sure. Euricin is the only cream
I can use under my eyes.This can be purchased at Walmart, etc. You must
moisturize under the eyes day and night. I am allergic to many eyecreams,
and am always looking for something to help my wrinkles. Last summer, I
had laser done under my eyes for the fine wrinkles. It helped, but age
is a hard thing to beat. I'm still trying.
Date: 11 Nov 1996 18:08:13 From: Ali Subject: New subscriber
I've been using a product called "Simicort" which is non-prescription,
contains no steroids and is sold in health food stores. I have eczema and
also a tiny bit of psoriasis on my face. It seems to have cleared the psoriasis
flareup within a couple of days. On the jar, it's described as "a soothing
cream for the relief of psoriasis and dry, irritated skin." There is an
800 phone number on the jar. It's (800)783-2286. A 2 oz jar retailed for
$9.25 in Ithaca, ny. I've also been using it as a nighttime moisturizer
on my eyelids and it's excellent.
Date: 11 Nov 1996 18:11:50 From: Ali Subject: non-irritating laundry
detergent
I'm interested in knowing if anyone has figured out a good laundry detergent
which will not irritate. Please do not suggest Ivory Snow (or Ivory Soap
for that matter). Both cause a horrible rash that burns!
Also is there a dish detergent that doesn't exacerbate hand eczema?
Date: 11 Nov 1996 16:12:42 From: Patsy Subject: non-irritating laundry
detergent
Tide and Cheer both have fragrance and dye free versions. I've been
successful with both. The only dishwashing detergent that keeps hand eczema
to minimal levels I've found is that which goes in an automatic dishwasher!
Date: 11 Nov 1996 18:56:03 From: Gayle Subject: Climate
I use Bounce Free and it does not bother me. The Bounce fabric softener
dryer sheets with perfumes drive me nuts. I couldn't sleep with laundry
with the smelly Bounce.
However, I avoid synthetic fabrics so only rarely use fabric softener.
You do not need fabric softener with cottons, linen, or silks.
Date: 11 Nov 1996 19:02:09 From: Gayle Subject: tea tree oil
I don't know if tea tree oil actually helps the eczema. It takes care
of any fungal or any other infection that has nerve to approach my open
skin. It is soothing.
Be careful about using it straight on your skin. It is very strong.
The stuff I use in the tub is diluted in other oils. The pure oil comes
in a very small bottle -- but you don't need much when you want to use
it.
Date: 11 Nov 1996 19:13:10 From: Patsy Subject: non-irritating laundry
detergent
We're all beginning to sound like commercials, aren't we??
Let me add that I hang clothes out on the line when weather permits.
The sun not only makes stuff smell good, but the air seems to weaken any
scent or chemical in a detergent.
Date: 11 Nov 1996 21:03:36 From: Kelly Subject: New subscriber
I tried Simicort a couple years ago, it's made by Enzymatic Therapy.
I liked the ingredient list but I turned out having a problem with the
salicylic acid, either 1 or 2%.
Through VDC the 2oz. jar is $7.88 and the 1oz. tube is $5.63, if your
interested the number is 800/848-2990.
Date: 11 Nov 1996 21:15:02 From: Kelly Subject: non-irritating laundry
detergent
I tried all the laundry detergents for sensitive skin including ones
hunters use that leave no residue, no smell, no nothing. The only one I
can use currently is liquid All Free, hypo-allergenic. With laundry you
should always double rinse, especially towels and bedding. I mentioned
on a post yesterday that I also use liquid Calgon laundry water softener
with every wash, that alone, has made a big difference for me.
Again the only dish detergent I can use is Dawn Free as long as I put
lotion on afterwards. I'm lucky if I can one item for any use, these are
mine.
Date: 11 Nov 1996 21:28:31 From: Kelly Subject: tea tree oil
In short, tea tree oil's an antiseptic. I started using it for staph/bacteria
control and it worked, just got to get rid of my husband to continue using
it. Just a note, all medicinal topical oils/herb I start out diluting because
my skin can show a negative reaction at regular strength (I'm extremely
sensitive), leading me to think I'm allergic but when diluted, some work
pretty good!
Date: 11 Nov 1996 21:33:59 From: Kelly Subject: Climate
Just a note, the Calgon will make all your clothing physically softer
by removing the built up residue.
Date: 12 Nov 1996 05:08:21 From: Christine Subject: Dish and Laundry
Soaps
Even water tends to dry the hands; so, it's probably best (even though
it's a hassle) to use vinyl gloves when washing dishes, and just go with
the best cleaning soap you can find. That just means I don't think any
dish soap is going leave my hands alone.
Regarding laundry soap, manufacturers recommend using more soap than
is needed to do a load of laundry. If you need to verify this, you can
call your local washing machine repairman. Cutting down the amount of soap
by 1/4 will still clean the clothes; and, there won't be as much soap residue
left on the clothing. Further, I read in a few places that we should put
our clothes through an extra rinse cycle because there's always soap still
left in the clothes after a normal wash and rinse cycle. (So, I just do
both.)
Concerning fabric softener (although this might cause problems for some
people), I notice that if I use it, my hands don't get dried out when I
fold my laundry; otherwise, they get so dry.
Date: 12 Nov 1996 05:59:02 From: Christine Subject: Best Eczema Site
I've Seen
Department of Health, Hong Kong:
http://www.hkma.com.hk/std/eczema.htm
Definitely worth the visit.
Date: 12 Nov 1996 08:35:42 From: Wren Subject: Laundry Detergent
When my skin became too sensitive to use Cheer Free, which is the dye
and perfume free version, I switched to Earthrite nonallergenic liquid
laundry detergent. I haven't had any increased itching; I buy it at the
health food store.
Also, I used washing disks for a while. They didn't bother my skin,
but also weren't terribly effective when cleaning oily or stained clothing.
Date: 12 Nov 1996 11:33:29 From: Kelly Subject: Dish and Laundry Soaps
The residue I use the Calgon for is the one that builds up over time.
Even if you double rinse from the time when you purchased the article of
clothing, you still will get the residue build up.
Date: 12 Nov 1996 11:46:44 From: Ken Subject: non-irritating laundry
detergent and climate
Hmmm... I've been using Ivory Snow for about a decade now and had assumed
that it was the mildest thing out there, but might now try one of the detergents
recommended by some of the folks on this list.
Someone wrote that his or her eczema seems to be better in hot and humid
climates. I just wanted to offer another data point because my own personal
experience has been the opposite. In fact, I just got back from a two week
vacation in Hawaii, where one can sweat out a couple of t-shirts a day
just by walking around.
I did go snorkeling a few times, however, so the eczema flare that I
had might have been caused by salt water and a little too much sun. I noticed
after about 4 days (each day I was in the water for about 1 to 2 hours
and was careful to take a shower and put vaseline on after going into the
ocean) that patches of eczema were developing on the inside of my arms
between the wrist and elbow and on my thighs. I don't usually have severe
eczema in those places. The condition seemed to worsen even after I stopped
going into the ocean after the 5th day.
After returning to my relatively mild area, it took only about a week
and a half for those patches to completely heal.
Date: 12 Nov 1996 11:58:37 From: Satya Subject: non-irritating laundry
detergent
I use Novon Free which is available on the east coast. It works best
for me compared to Tide and other name brands. I also do my laundry twice.
I first do the first wash cycle with the detergent. I wash it again without
the detergent. This I find is the least irritating. I don't think there
is any non-irritating stuff. They all irritate us, but we have to pick
that does the worst job.
Date: 12 Nov 1996 13:43:11 From: Patsy Subject: climate
I have to agree with Ken. Humidity ergo sweating, causes me more problems
than absolutely everything else. Because I am hot natured anyway, this
is a real problem. I wake up itching at night from having covers over me!
Of course, dry skin in general is worse in cold weather (I had a derm once
who told me not to bathe until the neighbors began to complain!), but my
eczema is much better when I don't have to cover body parts.
Date: 12 Nov 1996 14:51:58 From: Tom Subject: Product Suggetions for
Air Filters
I've heard that air filtration devices can help eczema sufferers. Any
suggestions on products?
Date: 12 Nov 1996 16:59:51 From: Ken Subject: climate
Hi Patsy. You and I are probably alike in our symptoms. The wetter and
hotter my body stays, the worse the eczema is. Furthermore, my eczema is
worse in areas where things such as clothes bind to my skin... e.g. around
my body where I wear my belt. I've starting wearing my watch in my pocket
for that reason.
I find that my skin cracks in the cold weather and that is a cause of
itching, but it isn't quite as severe as in hot and humid places. Autumn
and spring weather is nice, but those seasons come with mold and pollen.
Date: 12 Nov 1996 21:50:05 From: Faith Subject: non-irritating laundry
detergent and climate
Interesting, as the most recent remission I had was while I was spending
a lot of time in the ocean. However, the the air and water temperatures
were nowhere near what one would find in Hawaii! :) I'm still not sure
whether it was the cold that helped the remission, or whether it was the
total lack of stress for a full week that did the trick, but I got a full
two weeks of scratch-free bliss when we got back (which then ended abruptly
as I went into the worst flare-up ever!)
Another interesting note -- I just spent the middle of last week away
from home. My eczema was sort of muddling along until I left (a bit itchy
in a couple of common spots, no major flareup), and it eased off quite
a bit while I was out there. Within 15 minutes of my walking thru the door
when I got home, I went into a major itch frenzy in one of the more common
spots. It itched worse than it had in several weeks. Makes me think whatever's
triggering this on me is airborne... (it's leveled off again, though the
shoulder caused a bit of trouble over the weekend...)
Date: 12 Nov 1996 22:54:29 From: George Subject: non-irritating laundry
detergent and climate
I have always found that sun and swimming in the sea/ocean have really
helped my eczema. I've noticed it while vacationing in the Mediterranean
and also during the summer here while still working and having no difference
in my overall stress level. The ocean water here is fairly cold even during
hot days in the summer, but the Meditteranean definitely was often warm,
so I doubt temperature had much to do with it. I often spend a fair bit
of time in the water when I go swimming (at least an hour) and usually
notice a difference in any eczema flare-ups within a day. It also really
seems to help the healing of my skin. I wish I knew what it was that was
helping my skin so much.
Date: 13 Nov 1996 08:28:27 From: Syrina Subject: climate
>> told me not to bathe <<
That's from old time doc thinking, very unsafe for us.
Date: 13 Nov 1996 08:40:10 From: Syrina Subject: Product Suggetions
for Air Filters
I use an electrostatic filter I paid $25 for at Home Depot but I don't
have asthma or I would consider more than a filter alone. I also use a
shower filter for my skin.
Date: 13 Nov 1996 17:19:31 From: Max Subject: Tea tree oil and other
treatments
I've tried Tea Tree oil on my eczema, and it had little or no effect,
I found it only stung the skin...
Has anyone here tried the Australian-brand eczema treatment "Egocort"?
It contains 1% hydrocortisone, and it greatly helped my facial eczema,
which included red and flaky skin.
Also, can anyone recommend a good moisturiser for eczema? So far I've
been using 3M's BK Lotion, which has lanolin and mineral oil. BK works
okay, but I'm just after something stronger...
Date: 13 Nov 1996 23:26:37 From: Cheri Subject: New subscriber
I don't think hot humid is one bit better! I feel terrible in humidity,
sluggish and damp, and things take longer to clear up. The sweat stings
and feels poisonous to my skin. I think I'd rot before I ever healed! But,
give me a nice cool misty morning, and my skin and I think they've died
and gone to heaven. That's the difference for me.
Date: 14 Nov 1996 06:23:54 From: Brigit Subject: moisturiser and oils
Max, you asked about a good moisturiser; you might want to try the recipe
for making your own that I posted in October. It's really great stuff,
I'm beginning to wish I was in a different line of business than I am,
so I could market it, everybody I give it to loves it.
All, I found some really interesting little facts about the vegetable
oils that many of us use; here's two bits from a Web site that I found:
>>Wheat germ oil is emollient, it reinforces the lipidic cutaneous barrier
and improves hydration. (...) Usage level in cosmetics: 10 to 30 %. (...)
Average fatty acid profile (...) lecithin: around 2.0 % (...)<<
Now, lecithin is needed by the skin, actually some people find it helps
their eczema, but others (including myself) find that topical application
aggravates the problem considerably. Don't know of course about 2% of 10
to 30%, but I for one won't be using wheat germ oil now that I know this.
>>Bad results (of rose hips oil-based cream on acne scars - Brigit)
which seem to be due to a premature application of the cream. Indeed the
emollient character contributes in stopping the skin pores.<<
This seems to imply that emollients hinder the healing of wounds/sores.
Just FYI.
Date: 14 Nov 1996 09:13:40 From: Mary Subject: Methotrexate
Does anyone on this list have any experience using methotrexate to control
severe eczema flares. Any information would be most appreciated. Thanks.
Date: 14 Nov 1996 10:06:14 From: Brad Subject: non-irritating laundry
detergent and climate
Faith, do you remember what was on your mind when you returned home?
That might be an indication of why your eczema flaired up within 15 minutes
after your arrival.
Date: 14 Nov 1996 11:11:45 From: Brad Subject: non-irritating laundry
detergent and climate
George, Like you, salt water seems to help my skin.
Date: 14 Nov 1996 11:18:20 From: Kelly Subject: Comment on shower filers
The shower filter was one of my big hits, I could shred myself after
being in the shower for 2 minutes. Now with the filter, I still itch a
bit but I will guess the filter has taken away 85 to 90% of the itch, would
never be without it again. When traveling, I take it with me most of the
time, it just screws on and off, goes in a ziploc.
Date: 14 Nov 1996 12:13:59 From: Shelley Subject: Product Suggetions
for Air Filters
I use a Bionaire 2000 air filter. I keep it next to my bed and it seems
to make sleeping a lot easier. I know I need to change the filter when
I feel itchier than usual and my nose runs at night. I change it about
once every 4 months. I got the machine at a garage sale for about $10 and
the filters cost about $7 each.
Date: 14 Nov 1996 13:07:46 From: Christine Subject: Salt on Wounds
(Youch.!) & A Trip To The Beach
Concerning the ocean water ... it should be alright for people with
eczema to swim in it UNLESS their skin is raw from inflammation. Ocean
water is alright for me if I'm not totally inflamed; but, last summer when
I was so inflamed, it burned and itched like hives on fire (picture a mad
raging storm of flaming mosquitoes). I wouldn't recommend it for anyone
with raw, inflamed skin. Just dry skin is most likely a different story.
I'll share with you why I think some people could get better at the
beach:
-
With constant wetting of the skin, the EVAPORATION process is occurring
throughout the day. (I usually rinse off the chlorine and salt.)
-
Maybe the sun's PUVA;
-
Being away from all the contact TRIGGERS that you normally are around (refer
to: http://www.hkma.com.hk/std/eczema.htm for a list of possible triggers).
-
I CHANGE MOISTURIZERS and
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